My 16 yr old son just finished Chemo for Osteosarcoma

I am here for family members or teens with osteosarcoma….I can tell you our experience because it is very recent and still happening. God Bless.

May 17, 2010 by  
Filed under Community

  • Donna Nelson

    My 13 year old daughter was diagnosed with osteosarcoma last month and we’ve finished 2 rounds of chemo – due to mouth sores we were not able to do the 3rd round this week and drs say that we will skip the 3rd round & go to 4th round as scheduled next week – did your son have to skip any rounds – we are so nervous about that-

  • Robin

    Hi Donna,
    My son James had terrible mouth sores too and we had a terrible time with HD Methotrexate. There is a website call http://www.acor.org that will let you share with hundreds of other parents that have been through and are going through what we have been through. There is a couple of tricks for the mouth sores if I remember correctly one is glutamine and seemed to help lots of the kids. James was diagnosed in February of 2007, he didn’t finish all of his treatments either and has a a few small reoccurances and we go for scans next month. My feeling is that the treatments after the removal surgery are the keys to success, they are the ones that mop up anything missed by the initial chemo’s. If you want to contact me please feel free @ coolmom53@aol.com

    Good Luck and Lots of Hugs to you and your little Warrior!!
    Robin
    aka James Mom

  • sarah

    i just finishes chemo for osteosarcoma. how long has your son been diagnoised?

  • Tina

    Hi Anne, it would be great if you can answer this question of mine.

    How did it feel as a family member to see you beloved one been diagnosed with cancer and also how did you feel when your son went through treatments??

    Thank you soo much
    TIna

  • Debbie

    Hi…my daughter will turn 17 tomorrow, and was diagnosed with osteosarcoma on March 15, 2014. She has a 12.5 cm tumor right below her right knee. We just completed our 3rd round of chemo…we do 48 hours of doxorubicin and 6 hours of cisplatin (through intra arterial line in her groin) every 3rd week. Anybody have similar treatment? We live in Colorado and do our treatments in Denver. God Bless…

  • gaf11

    Debbie, My son Justin had the same treatment as your daughter when he was 18. He had 4 cycles of cisplatin and doxorubicin in the groin arterial area on the 1st cycle. His tumor in his left knee responded excellent and that was the only cycle administered in this manner. His next 3 were given in his port. He had a set back on his 4th round where he got an infection and almost didn’t make it. After 3 weeks he received 4 more cycles. He had a 95+% necrosis in the tumor after 4 cycles and we felt blessed he responded so well. He had limb salvaging surgery after that 4th cycle. The device broke twice in a year and he had to have additional surgeries to repair his leg. The 3rd surgery seemed to fix all his issues with the metal device in his leg. His doctor was at Cambell Clinic in Memphis, TN. We went right at 2 1/2 years with no relapse and then we found he had a 2 1/2 cm tumor show up in his left lung. They were able to remove it and get a satisfactory clear margin around the tumor . The doctor at West Clinic in Memphis said we would not do chemo and just check it every 3 months. 1st 3 month visit clear. Outstanding….2nd 3 month visit…another tumor about 5-6 cm showed up on his right lung with another 1/2 cm nodule on his left lung in the area where his first tumor was removed. The large tumor was removed and a clear margin was taken out in surgery. Next stop on his journey was a visit to MD Anderson in TX. They administered 12 rounds of Metotraxate. There was no new growths in the 6 months of treatment. We just went back last week for his 3 month check and …well not good news. The tumor on his left lung that they didn’t remove, but the dr. closely watched during the Metotraxate cycles, was stable and no change. It is now showing it grew to a bit less than 2 cm. and they found a “hotspot” on his left pelvis. Don’t know yet what that may be. We’ll find out next Thursday. Regardless he’s now 23 and scheduled to take 4-6 months of Ifosfamide. I know exactly the fear and lack of hope you’re feeling. My wife and I have rode that same roller coaster for 5 years now. We’re relied on our trust in Christ and belief God doesn’t make mistakes and all things have a purpose to allow us to give him honor and glory. This has shown me how I used to take each day at work…time with my family…and time I waisted on useless stuff in life. I now savor every sound, smell, and common sights as another blessing God has placed in my path. I’ll keep you and your family in my prayers. God bless your daughter and others going thru this situation. I know exactly how you’re feeling today! But there is hope in Christ for those that believe on his name! God bless you on your journey to wellness.

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