Thyroid cancer

My name is Victoria, I am 18 years old. Three days ago I found out that I have thyroid cancerous. Its all pretty scary and me and my family are still trying to deal with all of it. If any one has any advice it would be greatly appreciated.

Thanks

  • http://www.facebook.com/profile.php?id=100000217453955 Erin Cahalin

    cut your hair short so it will be look like a boy hair cut it so iut falls out faster…….fyi wigs are itchy try some cool lookin g hats cause it will dicisie it dont worry how much it is casue a good quality hat that looks good will last longer and try to get a neutral color so it goes with everything and when you go to treatment wear comphy cloths soo it will feel like pj’s if you fall asleep. and alway wher-ever you are have a bin or bucket in ever room of your house so you don’t have to run to the toilet you can go to a medical supply store for cheap. and to wash them put it in your toilet flush it and rinse it with water and blreach/vinger to clean it and don’t wear perfume it can cause head aches or just wear a light sent like a citruse or linen……… and try to take baths instead of showers and if you get pic catheder take glad presenseal around it so it dosent get wet it works like magic!!!!!! get well soon im a vetern 12 year old, and all these tips come in handy somewhere during treatment!!
    hope it helps get well soon!! ^_^

    • Jo Ann Broihier

      Three years ago my 39 year-old daughter was diagnosed with papillary thyroid cancer. Now my 17 granddaughter, her niece, was just diagnosed with it. I had half my thyroid removed last year because of Hashimoto’s disease, and my mom had Grave’s disease, (a goiter causing hyperthroidism.) I don’t know what kind of cancer you have, but my daughter never lost any hair or got sick from the radiation-laced iodine tablet she was treated with. The worst part is they keep her hypothroid or low on thyroid replacement hormone because the cancer doesn’t grow as fast when their isn’t as much of it available. It just makes her a little tired. Sammy, my granddaughter, will have her thyroid removed July 16.

      • jennak

        to JoAnn Broihier regarding thyroid cancer
        Maybe there is a genetic component to this especially given your family history with your daughter, grand daughter and niece?

        My mother,grandmother had it and now it’s my turn. There are lots of research now conducted at various med. research facilities through out the country.

        Good luck to you and your family
        Jenna

  • http://www.facebook.com/profile.php?id=583365655 Katie Sisk

    Hey :) I turn 17 next month and i was diagnosed with Lymphoma April 22nd so we’re newbies together :) I was kind of in denial about my hair falling out so it was really traumatizing to me, if I were you I would cut it short now. Deffinately wear comfy clothes when you go to your treatments and id recomend a port instead of a pic line. I have a port and i love it :) I know its really scary and upsetting but everything will be okay. Your doctors will take good care of you and just keep your head up and keep on trucking :) your friends and family love you and will be there every step of the way :)

  • Brendon

    Sorry to hear about your diagnosis, you’re probably scouring the internet to learn as much as you can, which is good. But there’s a ton of information on the interwebs, and at some point you’re going to get overwhelmed by it all.

    In addition to getting educated, take an active roll in your care. Don’t sit back and be a victim. Studies have shown that cancer patients who took an active role had a better quality of life and outlook during and after treatment.

    Here’s a link that has some good information about treatment options http://www.navigatingcancer.com/cancer/thyroid/categories/treatment, and they also provide free tools that let you track how you’re feeling, so you can print off detailed summary reports for your doctors, which will help them to provide you with the best care.

    Stay strong, good luck.

  • jennak

    to Victoria Rawls regarding thyroid cancer:
    There is a support group with lots of info for thyroid cancer at thyca.org.

    I am a thyroid cancer survivor. Good luck to you.

  • http://www.facebook.com/colleen.begley Colleen Begley

    Hi Victoria, I also had thyroid cancer. I was diagnosed when I was 14. The treatment is often removing your thyroid or one lobe (half) through surgery, and then radioactive iodine (RAI). During RAI they will give you a pill which contains radioactive iodine, and then you have a few scans that will pick up the iodone. The thyroid takes up iodine, so if there is a concentration of the radioactive iodine, that could mean there is thyroid tissue or tumor left. But, that also means when it is used as treatment, the radiation will kill off this remaining tumor. Before this, you’ll have to go on an iodine-free diet for a few weeks so your body will take up the most iodine as possible at the time of the treatment. This can suck but there are some pretty decent recipes at thyca.org, and you can also look for kosher foods (as long as they are not dairy) because kosher salt doesn’t have iodine. You will probably be on a thyroid hormone pill after your surgery, and you may have to go off this before and during the scan. This will lower your thyroid hormone, and cause your body to produce more thyroid-stimulating hormone (TSH) which will encourage any remaining tissue to work more. This will probably make you feel pretty tired and cold. They also have a new recombinant hormone, which is a shot and will raise your TSH, so you don’t have to go off the pill. I haven’t had this, because my body reacted badly to going off the thyroid pill so we stopped doing the scans after a few years. However, my doctor said it’s usually used after you have one negative scan. The worst part of the actual scan for me is that it gets super-close to your face, lol. You also have to follow some precautions depending on your dose – like eating on paper plates, doing your laundry separate from your family’s – so that other people aren’t exposed to the radiation. There are more precautions the higher a dose you get. RAI can be in a high dose if they are trying to kill off remaining tumor, or low dose if they are just doing a scan to see if your cancer has come back. I didn’t have to stay in the hospital, but if you are getting a really high dose, you might.
    People rarely have chemo for thyroid cancer unless is an advanced, rare type or nothing else has worked.
    My advice would be to be patient with yourself, especially if you have surgery and during RAI. If you have to go off the thyroid hormone, chances are you will feel more tired than usual, and just don’t try to push yourself too hard. If you are having side effects, definitely tell your doctor. My doctor didn’t listen to me, and I ended up having really bad side effects from going off the thyroid pill (which I will add, is RARE, but it’s always good to keep up communication). That can especially help adjust your thyroid hormone dose because everyone will react differently to it, and a good level for one person might make you feel excessively hyper (too high) or tired (too low), so your doctor needs to know that. The pill is not a big deal – if you don’t like swallowing pills you might be able to mix it in applesauce or pudding (but ask your dr. first). If you’ve never had surgery before or even if you had, that is still a big deal! You’re probably freaked out about it! Talk to your family or friends, and that might help you feel less scared. Schedule it in the early morning so you are not awake very long, or else you will be hungry (you’re not allowed to eat after midnight the night before surgery)! ;) RAI can be really frustrating too. My family went on the low-iodine diet with me which was really nice, since I had someone to complain about it with. And like I said, give yourself time to rest if you need to. My friends always found ways to joke about it, which really helped. One of my friends found a “radioactive” bracelet that glows in the dark and gave it to me while I was doing a RAI scan, and asked “why don’t YOU glow?” It was really funny and made me feel like I could get through it, and also less isolated because she understood what I was going through.

  • http://www.facebook.com/profile.php?id=774345166 Sarah

    Hey, my name is Sarah and I’m 17. I have been through Thyroid cancer twice now, so If you have any questions or just need to talk, let me know. In hope your feeling better!

  • Beverly

    I had papillary cancer, I had my entire thyroid removed, and they say I am cancer free. If surgery is an option, that is best thing to do.

  • Mary

    Today it was confirmed that my almost 15 yr old daughter has thyroid cancer, I am scared to death for her! We were only at the doctors for a yearly check up and they found a lump on her neck. We meet with the surgeon tomorrow for more details. I would like to know how long is the recovery from the thyroid removal and does the follow up treatment really wipe her out. Any information would be helpful.

  • Farhana:)

    Hye Victoria Sweetie..
    hw have u been so far?hope ur doing GOOD and be STRONG as always..
    have Faith and never give up yea..

    we LOVE u..

    p/s:if u feel like talking to someone..feel free to email me (nottylicious.babe@yahoo.com)..i’m always here for u:)

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