Comments on: Retinoblastoma::

By: Nicole

Nicole — Tue, 01 Feb 2011 18:01:34 +0000

I’m actually going through diagnosis and treatment right now as an 18 year old.

By: Leah Shearer

Leah Shearer — Sat, 20 Nov 2010 00:53:31 +0000

Thanks Christina for making this connection for Erin.
That’s the beauty of the internet…making a very large world smaller (especially when it comes to support.)

Leah Shearer
TLC Program Coordinator

By: Christina Iyengar

Christina Iyengar — Sun, 07 Nov 2010 16:13:28 +0000

HI there ..
Well, I am the administrator for the Facebook group site for Retinoblastoma International. And I actually know of another 14 year old who lives in Florida who is a rb survivor. She is a fun girl and I could hook you up. Please go to facebook and look for Retinoblastoma International (group – it has a picture of a little girl) and “like” it. Then post me a message so I can have the other girl contact you directly. If that doesn’t work for you, send me a message on christina.iyengar@hotmail.com.
I can’t really give contacts out. I would need an official request to ask the other girl to contact you. Sorry.
There are others as well. I will look forward to hearing from you.

Christina

By: Leah Shearer

Leah Shearer — Fri, 05 Nov 2010 23:33:09 +0000

Hi Erin,

I hope there is someone on here that might be able to share their experience with you.
But in any case, I think that it’s likely even if you can’t find someone with the exact same diagnosis you will find lots of people who know what the difficulties and the challenges are like.

Hugs girl. There are lots of people here for you.

Leah Shearer
TLC Program Coordinator