ewings sarcoma

Hi, Im Isela, my son Guillermo was dx in 2008 ewings sarcoma soft tissue

one year treatmen (surgery, chemo, radiation and chemo) Now he will be 19 years old

Is a happy boy, healthy with a normal life… His check is now every 4 months.

Please if you want to contact me will be a pleasure share with you our experience.

We are from Mexico, City…

April 6, 2011 by  
Filed under Survivor Stories

  • http://www.facebook.com/profile.php?id=513670386 Kayla Blair

    Hi.. I recently got diagnosed with Ewing’s Sarcoma of the soft tissue (small bowel)

    I had a surgery in Feb 2011 to remove a tumor in my small intestine and am currently going through chemo. My form is very rare and there may only be one other reported case in the world.

    Best of luck!
    I am from Canada.

    • Kal

      My daughter has ewings she has had8cycles of chemo 5radio she has in lungs spine skull hip chest arm she is very sick cant eat consultant says no more help she was wrong diognosed with growing pain muscle

    • Al

      Hi, I am 49 and same rare issue (ES in my small bowel). I had a surgery and just completed my chemo. Hope its all going well for you.
      I am in Florida, USA

  • http://teencancer.co.uk Ryan Fagan

    Hello, I have Ewings Sarcoma and Im 18, I was diagnosed at 16

    Mine has come back three months ago. I wanted to ask what chemotherapy did your son have?

    I had the Ewings 99 Study for 1 year, it has not worked. I have also had other regimens and that has not worked

    As you may be able to tell my luck isn’t very good and so I really would like to know what chemotherapy drugs your son had so I can ask my constant

    Regards,
    Ryan

  • chelsea g wallace

    I was just diagnosed with Ewings Sarcoma. I am almost 25, which I hear is a rare age to be diagnosed with this. I had surgery on the 9th of January to get a tumor removed from my small intestine. Any information on this would be helpful. Thank you

    • Elyssa

      My name is elyssa and im 14. I was diagnosed february 21,2012. I finished chemo on dec 24,2012. I would be happy to share information!

      • Sue Mac

        Hi Elyssa. My daughter is 16 and was just diagnosed with Ewing’s sarcoma. Any advice you can give me/us would be helpful. She will be going into her senior year this fall and not having hair is very upsetting to her.

      • Elyssa

        Hi Sue! It’s Elyssa. Your daughter should keep a positive outlook while going through treatment, as it can get really rough. I was very upset at the fact that I lost my hair as well. Hats were a good choice for me. People realized other features about me, that they wouldn’t have paid attention to while having hair, like a great smile or bright eyes! If you don’t mind me asking, can I have your email?

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