Comments on: BMT and MDS http://www.teenslivingwithcancer.org/2011/09/12/bmt-and-mds/?utm_source=rss&utm_medium=rss&utm_campaign=bmt-and-mds Just another WordPress weblog Tue, 11 Jun 2013 20:09:00 +0000 hourly 1 By: Carly http://www.teenslivingwithcancer.org/2011/09/12/bmt-and-mds/comment-page-1/#comment-4358 Carly Thu, 20 Dec 2012 12:17:00 +0000 http://www.teenslivingwithcancer.org/?p=2168#comment-4358 HI both,

I see this thread is quite old, was just wondering how you both are getting on? I’m 19 and got diagnosed in August and due to start the BMT process in March, so so scared!
I’ve found it very hard finding other people that aren’t old with this condition!
Carly, UK

]]> By: Henriette http://www.teenslivingwithcancer.org/2011/09/12/bmt-and-mds/comment-page-1/#comment-4135 Henriette Fri, 06 Jan 2012 00:26:00 +0000 http://www.teenslivingwithcancer.org/?p=2168#comment-4135 Hi Julie Ann!

I’m 22 years old and was diagnosed with MDS about 6 years ago.
I’m not having any treatment now, and don’t use any heavy medication either. I have been ill before, but all in all I have been very lucky so far! I also have a donor in case it gets critical.

Its very hard to find good information about development of MDS in young people.
And I haven’t really talked to anyone else with the illness since there isn’t that many of us!

What kind of MDS do you have, I have RARS…

Are you still waiting for the bone narrow transplant or has something happened?

Love to hear how you are :)

Henriette, Norway:)

]]> By: Julie-Ann Mansfield http://www.teenslivingwithcancer.org/2011/09/12/bmt-and-mds/comment-page-1/#comment-4036 Julie-Ann Mansfield Tue, 20 Sep 2011 01:59:00 +0000 http://www.teenslivingwithcancer.org/?p=2168#comment-4036 Ok, now I’m sighned in properly! Lol.

]]> By: Julie http://www.teenslivingwithcancer.org/2011/09/12/bmt-and-mds/comment-page-1/#comment-4035 Julie Tue, 20 Sep 2011 01:54:58 +0000 http://www.teenslivingwithcancer.org/?p=2168#comment-4035 Thanks Leah. You know, I only just discovered Melissa’s Story and it is a real inspiring one. Wish I had her courage and determination.

I was diagnosed with Aplastic Anemia when I was 20. Transplant was discussed back then but a match wasn’t found. I struggled for a few years with transfusions and treatment, then became quite well. Transfusion free for 14 years! But now diagnosed secondary MDS and my life has become uncertain again. I struggle a lot with depression too, which makes me look at Melissa’s story and long for the passion she had for life. I need something to fight for. And being single and childless, I feel like I’ve lost my opportunity to have a family. But I guess that isn’t everything. I’m an Auntie to 3 lovely little girls. My sister is my hero. Always wanted to be like her.

Anyway, that’s some of my story. I’m taking a copy of Melissa’s Story to my Psychologist this afternoon. I’m determined to get on with my life the best I can, but just need a little help. No shame in asking for it.

Thanks again for replying to my post. Are you a patient yourself Leah? xo

]]> By: Leah Shearer http://www.teenslivingwithcancer.org/2011/09/12/bmt-and-mds/comment-page-1/#comment-4033 Leah Shearer Mon, 19 Sep 2011 13:41:33 +0000 http://www.teenslivingwithcancer.org/?p=2168#comment-4033 Hi Jules,

Welcome to the site. You might find it surprising, but a lot of survivors come on here or past their teen years but were diagnosed as a teen. It’s my feeling that in many ways things you experience as a teen stay with you.

I think you likely have a lot of valuable insights to share…and it’s very likely folks on here have might have experienced similar issues.

When were you diagnosed, Jules?

Leah Shearer
TLC Program Coordinator

]]>