Comments on: Knowing and yet not knowing

By: Maggie

Maggie — Thu, 11 Oct 2012 17:50:00 +0000

Hey Ali,
Omg that is exactly how I’ve been feeling for the past few months. And it’s been really getting to me. It’s nice to know I’m not the only one who thinks like that. If you want anyone to talk to you could email me. maggieanndimenna@gmail.com It would be nice to have someone I can vent to.

By: Megan

Megan — Wed, 26 Sep 2012 22:18:00 +0000

And get yourself as educated as you can about your cancer as fast as you can. If I can give you a piece of advice, it is that you are the best doctor for your body. You need to make every decision about your body that you can no matter what. Be involved in your healthcare like a nut. Don’t leave a doctors office unless you feel safe and comfortable about your body and whats going on, because its the doctors’ job to do everything they can to keep you happy and healthy.

By: Megan

Megan — Wed, 26 Sep 2012 22:15:00 +0000

That is exactly what happened to me. I have stage 4 lung cancer. And when I went to the hospital to find out it was because I had fluid in my lung. But the doctors said I had been living with it for 4 years! I can’t believe it, because I have a 2 year old daughter and I made it through pregnancy and birth healthy for her. But I ALWAYS KNEW there was something wrong. And doctors always diagnosed me with chronic lower back pain and thats it…

By: ricky

ricky — Fri, 27 Jul 2012 06:11:00 +0000

people watch this video http://www.youtube.com/watch?v=-06wR3kPNE0

By: Bryn Thomson Mugnolo

Bryn Thomson Mugnolo — Mon, 23 Jul 2012 03:46:00 +0000

Hey Ali. I think I know exactly what you mean about knowing what was wrong with you before being diagnosed. I always thought I would have cancer, for some reason, and it terrified me. When I was twelve, I felt a lump on my neck one night, among the other signs I had been experiencing- though I didn’t realize the significance at the time. When I felt that lump, I just knew. I tried to talk myself out of it, and tell myself that I was jumping to conclusions. But I was right. And the scariest part is between awareness and diagnosis- you know there’s something wrong, but you don’t yet understand, or have a plan of action. This is crucial:

Find out your plan of action. Find out everything you can about your sickness, and everything you can about what you can do. It will feel so much better just to KNOW. That’s what I experienced- I could deal with the fear of treatment, but I couldn’t stand not knowing. So help yourself by finding out.

If you ever want to talk, send me an email at bmugnolo@aol.com. I’d love to help out if I can. From Bryn.

By: Leah Shearer

Leah Shearer — Mon, 16 Jul 2012 19:34:00 +0000

Hi Ali,

No one thinks you’re crazy. To be honest…it’s the situations that are crazy. It’s just feels crazy as you try to adapt to all the swirling chaos of life in these serious medical situations. Make sense?

At least this is my explanation for it. I have seen it happen over and over again so just know you are not alone. And in my own situation I dealt with it myself…I think it might be crazy if you didn’t feel turned upside down.

And yes, I, myself had a sense of what the diagnosis was before it was officially announced. Is that what you meant?

Anyone else have a similar experience?

And Ali, as for your other question—have you tried logging on through Facebook– that is if you have an account…

Leah Shearer
TLC Program Coordinator
Rochester, NY