What a journey


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This post send by brittany

September 11th, 2012 was probably the scariest day of m my entire life. It was the day i was diagnosed with synovial sarcoma, a rare type of bone cancer found in kids. Although it hasnt been that long, i feel like i\’ve been dealing with it forever. I had to undergo chemo, radiation AND surgery. Chemo for me wasnt even the worst part. The surgery was. I finally finished chemo and had my surgery January 3rd of 2013.They had to take a huge piece of my femur(thigh) bone out and i now have metal and a 10 inch scar.I\’m doing a lot better with getting around. No more wheel chair.Just crutches. I shopuld be getting my port out soon. And when i thought i was done, i fell yesterday on my leg and i am back in the hospital because of pain management. Its a never ending rollercoaster and i wanna get off.

May 29, 2013 by  
Filed under Survivor Stories

  • Leah Shearer

    Hello there Brittany,

    Sorry that you’ve been dealing with such a rollercoaster. I think many teens and young adults here now the exact feeling. I’m glad you found us.

    I actually know a young man in our circle here that is a synovial sarcoma survivor. I would love to put you in touch with him so you could perhaps talk.
    He’s a pretty cool guy- perhaps you might even be interested in joining us in a video chat. TLC is in the early stages of developing regular video chats…and if I know the names and emails of those who are interested I can make sure that you are in on it.

    Let me know and email me Leah.shearer@teenslivingwithcancer.org

    Leah Shearer
    TLC Program Coordinator
    Rochester, NY

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