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  • Looking for Cancer Patients to Interview!

    February 7, 2013 by  
    Filed under Community

    Hi, my name is Cassidy. I am conducting a project my Girl Scout troop on the effects of cancer on teens. As a teen myself without cancer, I can’t imagine how it must feel to go through such a tough thing. I hope to hear from anyone. Please email me at cassidykotyla@gmail.com if you’re interested or have any questions. Thank you and have a great day!
    Cassidy

    Introducing College Beyond Cancer

    February 6, 2013 by  
    Filed under Community

    I want to introduce College Beyond Cancer as a financial resource for educational expenses for college and graduate student cancer survivors. It is a specialized online fundraising site that can be checked out at http://collegebeyondcancer.org. Hopeful it is helpful!

    Leukemia

    January 27, 2013 by  
    Filed under Survivor Stories

    My name is Katie. I was 2 years old when I was diagnosed so I guess this doesn’t really fit in with the whole “teen” thing.. but I’m a teen now, so I decided to put in my two cents. I don’t really remember a lot about having cancer, I mean, I was 2. Do you remember things when YOU were two? I remember bits and pieces, as would anyone. I was diagnosed with Acute Lymphatic Leukemia in January 2000, 13 years ago. I was in remission when I was 5. I’ve been cancer free for about 10 years now. My mom told me that I was on the verge on dying.. I was supposed to die the night that my pastor at the time came and he prayed for me and I don’t know what your view of religion is, but I believe that there is power in prayers because the next day, the doctor said that there was a chance of me living now and from then on, I kept getting better.. Now I am healthy and I hope to work with cancer children when I’m older. Every July there is a Relay for Life cancer walk in my town, I have gone every year since I was about 4 maybe. All I have to say for those of you fighting: Hope for tomorrow. Pray whenever you can. Love always. and Kick cancer’s ass. <3 I love you all. STAY STRONG

    Lil Ducky’s Journey- Long Road

    January 17, 2013 by  
    Filed under Friends and Family

    Okay, this title sounds weird, but out of respect for my friend, I changed her name, just in case.

    It was back in November when I found out my best friend (aka, Lil Ducky)has leukemia. Its been a tough road already. I thought this would bring us friends together as a united front, but its only tearing us apart. There is more aspects here that are going to be difficult than I thought. We’re all there for her though when it counts, and thats all that matters.

    I’m so thankful I have been able to visit her, and sometimes we can get so caught up in what we’re doing, it’s like nothing is wrong. But of course, everything is. My lil duck has the misfortune of suffering generally all the RARE side effects of AML leukemia. She never stops telling me how shes going to kick it’s butt though, and can’t wait for summer.

    Since we have found out, we have started a committee for fundraising and it’s amazing how the community has come together for this beautiful family. I thank God we live in Canada, were we do not have priate health care, but I’m sure with the help from these amazing people, we would find a way anyway.

    Anyway, I’ll probably be posting more, and if anyone ever wants to talk about ANYTHING, say so in the comments, and I’ll tell you my email or we can connect somehow. :)

    ~Taylor

    My Dad

    January 15, 2013 by  
    Filed under Coping with Cancer

    My dad says he has sacrificed more than I have in the last four years that I disrupted. I find that hard to believe. He says its my fault we moved out of our house and sold all we owned (which wasn’t much) and had to live in a camper for over a year. And it is my fault but he did not have to have take the red devil chemo and puke every single day, too many times a day to know. He didn’t lie on an operating table for 14.5 hours and wake up not knowing if he still had a leg. He can still run, and jump, and ride a bike, and even put his own sock on. While I can do none of those things. He has all of his lungs and can breathe easily. I am missing half of my right lung and get out of breath quickly. He didn’t have 2 different port placements and one removal, nor did he have to get stuck with needles 24/7. His body is not permanently scarred with the scars no one should have to bare. He may have been there and saw everything I went through, but what did he sacrifice. I know it hurt him but he did live everyday wondering if it was his last. Of I course I did not tell everyone this all the time, but I did wonder, I was scared that I might not see tomorrow. Anyone of us can go at anytime from this messed up world but you never think of that until you know you could be next. I am sure he thought all of these terrible things but if I was gone, he would still be here to taunt me forever of lost life. My dad is not mean but cannot understand that I was the one battling for my life. I am the one who has been poked and prodded and sliced and diced. I am left with the battle scars that someone 5 times my age should not have to endure. I was poisoned with one harsh medicine after another and grilled with radiation. I was the one that was told you have cancer 4 times. And I was the one that was given up on by my doctor. I changed in so many ways that I don’t even know. I try not complain that much, though it’s hard. Living life to the fullest is now my favorite dream. I want my dad to understand but I hope he, himself never has go down the scary road that is cancer. I have been lucky for every time I have gotten cancer, it has been destroyed. I am so lucky to have gotten in a trial at St. Jude. I am even luckier to be 4 months in remission. I am the luckiest to have gotten cancer and if I could go back, I would not change it for the world. I was not so much before but now am convinced that there has to be someone or something that gives us this luck. God or fate or whatever you prefer but there is no bad luck; it may seem that way but there is always a reason and will turn out alright in the end if you believe. And I don’t mean God or anything like that, just believe that it will get better and I know it will. I have a weird theory that you only die if you want to. I choose to live and that is what I am going to do. So now that I’ve thought about it, if my dad thinks that those material things are so important, then maybe he did sacrifice more than me. Because to me I may be covered in scars and missing several “important” body parts but I am alive, cancer free, and I have gained so many new friends and experiences that there is nothing for me complain about. I wish my dad could see this and understand and see it the way I do now. Thanks for letting me get this out, I hope it helps some else who’s down in the dumps about whatever is bugging them. Dominique

    Update (Sorry it’s been so long!)

    January 13, 2013 by  
    Filed under Coping with Cancer

    So I had this all typed out, hit the wrong button on my computer and erased it all. Obviously I’m not computer skilled.
    So it’s been a while since I wrote here. i think the last time was right before the scan I was going to have that would confirm that I had cancer.
    In September I was diagnosed with cancer, a tumor on my liver with mets (I think) on my brain (And don’t ask me the name of the cancer because I am totally drawing a blank right now… yay, brain tumor!)
    My cancer is slow moving abd we’re waiting for cancer to make the next move. I’m not doing any chemo or radiation, instead opting for alternative treatments to try to get my cancer into stability.
    I go back to get more scans and blood work and meet with a bunch of doctors at the beginning of February and that, hopefully, will give us a better idea of what we’re dealing with.
    Things have been getting a lot better in this past week both emotionally and physically (yay!) so i’m really hoping it will be good news I get in February (Or all these natural diets and cleanse’s and detox’s and meditation and yoga and reiki and juicing would be for nothing)
    And other then that… I turned 16 since my diagnosis, which is crazy. I don’t feel old enough to be graduating next year. But I am! I’m still single (Sigh…) and I think the cancer thing really freaks out most people. I’m attending school part time, working casually and am turning into a full time healing junkie.
    Sending love and hugs to all of you
    Ali

    id love to be a model for teens living with cancer

    January 12, 2013 by  
    Filed under Coping with Cancer

    hi my name is maria bustamante but i go by mia
    i have stage 3 type B Hodgkin lymphoma and everyone i meet tells me how strikingly beautiful i am with and without my hair. im completely bald now and i still have all my confidence if not more; multiple employees at Randall children s hospital in Portland Oregon said i could be a model for cancer. im very very interest and want to be a model but im 17 and 5’1, but please stay in touch and help me find out more info about modeling i want to make a difference in other teens and kids lives by showing them that life is so far from over because of cancer. i have cancer, cancer does not have me:)
    sincerely maria

    Rachels’ Story

    January 10, 2013 by  
    Filed under Friends and Family

    My name is Rheanan, and my best friend Rachel was just diagnosed with stage two leukemia. She won’t give me many details, but my friends and I are all her best friends, and we just found out tonight. We aren’t handling it well at all. How do you cope? How do you deal with something you never dreamed would happen to your best friend?

    Bladder Cancer

    January 3, 2013 by  
    Filed under Survivor Stories

    Hi, I’ve only just found this site as I thought it might be helpful to share stories with people who have gone through a similar situation to me.
    2 years ago when I was 17, I went to the doctors with an unusual numb feeling in my right hip, he sent me for ultrasounds, CT scans, MRI scans and eventually for a flexible cystoscopy (incase anyone doesn’t know that’s basically when they put a camera up into your bladder). As soon as the cystoscopy was over I was asked to wait in the surgeons office while he went to get my parents, we all sat in the office while he told us I had a bladder tumor that could be cancerous, as soon as I heard the word ‘tumor’ I just completely zoned out.
    I was put on an emergency list and I had an operation just 2 weeks later to remove the tumor, they done some tests and found out it was cancerous, so they injected a dose of chemo into my bladder.
    Luckily that one dose was all I needed and I now have an operation every 6 months to check the tumor hasn’t came back, which it hasn’t done yet!
    I am definitely very lucky and sometimes I don’t think I deserve the sympathy people give me, all I think is I didn’t know it was cancer until after it was gone and I only needed one dose of chemo, which didn’t give me any side effects at all since it was injected straight into my bladder.
    The only thing is sometimes I feel like I don’t have anyone to talk to about it, no-one I know has gone through anything like this and according to my doctor, Im about 60 years too young to have bladder cancer, no-ones knows why I got it so young and now everytime I have my 6 monthly operation or I have the slightest pain in my bladder im terrified the tumors back. I guess that’s just something ill have to get used to.

    Thanks for letting me rant, haha
    Sarah

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    January 2, 2013 by  
    Filed under Uncategorized

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