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August 15, 2013 by  
Filed under Community

This post send by

i have had a headache for the last two weeks if any one has any suggestions please let me no

March 13, 2011 by  
Filed under Community

The 2 cancers’ that I beat were rhabdomyosarcoma in my right jaw muscle and osteosarcoma above my left knee. I also received a blood transfusion after chemo with West Nile virus in it. I contracted West Nile Encephalitis and was a vegetable even unable to talk for 4 months. I had to relearn everything. So if anyone wants to talk about a bad hand dealt to them I am a great listener and I’m pretty sure I know how you are feeling.

March 12, 2011 by  
Filed under Community

we talked tus with transplant team and we r doing the transplant the day i get out of school and ill be in there for the hole summer and next year school year . its hard to go through this be my sister is going to be my caregiver,.

hi my name is jeremiah i am starting a chat line for any one on here it will be a chat line number it is not only for people that went throo cancer but it is for adalts to email if interested in being apart @ jeremiahg20@gmail hope too here from you soon

February 27, 2011 by  
Filed under Community, Coping with Cancer, Survivor Stories

Hey Guys! I’m new to this site so I thought I’d introduce myself.

My name is Rachel, and at 14 years old I was diagnosed with Stage 4 Hodgkin’s Lymphoma. Since then, I’ve gone into remission and then relapsed, so I had to have a stem cell transplant. I’m now 18 and in remission as far as I know, but I just had a CT scan and I’m really nervous about the results. I have this horrible feeling that my cancer’s come back again. I’m trying to be positive but I don’t think I can go through this for a third time.

I just wish I could feel like a normal kid again.

November 6, 2010 by  
Filed under Community, Friends and Family

I THROW MY ZOFRAN IN THE AIR SOMETIMES SAYING AAYYOO… WHERE’D THE BOX GO? This should be made a like on facebook, if you ask me. To confuse people.

If anybody on here is British, add me? If everyone here isn’t British, tell me to go drink tea and play croquet or whatever you think we do.  And if you want someone to talk to (like there aren’t enough lovely people already) then add me.

LOTS AND LOTS AND LOTS OF LUVVIN <3 <3

July 27, 2010 by  
Filed under Community

i hate having leukemia, i can’t do anything anymore. i can’t play baseball and i can’t play soccer. i can’t do what i used to do before all this happened, and worst of all i hate seeing my girlfriend suffer with me. she’s always trying to help me think positive ,but it’s very difficult to do when your in so much pain. Damn, i hate the fact that this is not only affecting me. but it is affecting her as well. why does this happen. !!!!!

April 14, 2010 by  
Filed under Community


I got my test results. They found two cysts in my groin. going to the ogyn (yuck) sometime next week. Hopefullly the pain will go away. I just want it to be next week.

January 10, 2010 by  
Filed under Community

Hi:) mi name is shantae’ im 17 about to be 18 feb 6 i am a cancer survior(Hodgkins Lymphoma i will been in remission for going on 3 yrs YAY

October 27, 2009 by  
Filed under Community

Hey everyone! Good luck at the hospital for those of you who are in treatment! I can’t wait for TLC tonight :)

Back in treatment, back in the community

September 14, 2011 by  
Filed under Community, Newly Diagnosed, Support, Survivor Stories

Hey everyone,

I’m really glad that this site is still here and that people are benefitting from it. I was first diagnosed with Synovial Sarcoma at age 15 in 2002. Chemo, major surgery, radiation… we all know the drill, I’m sure.

Remission follows, thankfully. Lots of physical therapy. Then I graduate high school, move away for college, pursue a career in music, and then move home for a bit this summer after 6 years away. BAM! 8 years cancer free, and a tumor grows on my right knee 2 months ago and I find myself right back where I was. I could yap about that for hours, but I’m so goddamn tired to talking about it with my friends and family. I showed up on here again to see how this community was doing.

Like I said, I’m glad this site is as active as it is. BUT….. we can do better, people. And since this place is founded on donations and limited time/resources, we should try to be active in playing a role in that. I’m talking almost-exclusively about Facebook. Yes, I’m aware of the Facebook Group that we have. For those who aren’t, go here:  http://www.facebook.com/groups/37673471877/

Still, I recall many of the lost times I went through during my first battle, and it these days it just feels so senseless when we have the means of communicating with people who really understand. And that’s why we’re all here, isn’t it? We can talk to our friends and family, and they will listen to us until their ears bleed. But we’ve all had that feeling; as if we’re talking to a wall or speaking a different language. The feeling that someone is nodding their head without truly understanding. So we come here to find that understanding, learn about the problems we’re having, and help others cope with theirs.

Not everyone is desperate for someone to talk to all the time — I understand that. But I get the feeling (based on my own experience) that most of us simply aren’t connected enough. If you feel like you want to, then you should do it. Be it through private conversations, email, chat, or anything else.

My name is Evan Ruscher. I am 24 years old. This is my Facebook page: http://www.facebook.com/eruscher. I’m unemployed and beginning cancer treatments for the second time, so trust me, I’m on there a lot. Friend me! Don’t be shy! I live about 20 miles west of Rochester, NY. If you EVER want to talk about anything, please contact me… on here, on Facebook, or on the TLWC group page. If you want to go out for dinner, coffee, or a drink (okay, this site is for teens, but I know I’m not the only one over 21) in the area… let’s do it (barring our respective health, of course). Hell, we can talk about everything BUT cancer, if that’s what’s best!

I can’t stress this enough: you should not feel alone. We’re the 21st century digital kids — there’s no excuse not to join together in a community, unless of course you don’t want to. We came to this site because we know that feeling of isolation, and that lack of understanding that we deal with so often. So…. we have the methods these days…. why not go around all that mess and become a stronger group?

 

Best Wishes,

Evan

 

 

 

Balding for Dollars 2010!!

March 23, 2010 by  
Filed under Community

Help me support childhood cancer and blood disorder patients by donating to the Balding for Dollars program and by joining this event and inviting everyone you know to help raise awareness.

“Balding for Dollars is an event initiated by parents and hospital staff touched by childhood cancer and blood disorders with the goal being; to raise community awareness for childhood cancer and blood disorders, provide funding to support the oncology program at BC Children’s Hospital and support children and their families during and after treatment.”

From now until May 8th I will be gathering pledges to raise money for the Balding for Dollars program. In return I will be shaving my head to support the “bald is beautiful” mandate.

——————————————————————————————
The donations are split up approximately like this:

40% to financially supporting families who have a child with cancer; Balding for Dollars will help out with supplies, medication costs, and transportation costs (especially for families who live outside the Lower Mainland)

20% to pediatric oncology research at BC Children’s Hospital

20% to education bursaries and scholarships for childhood cancer survivors and their siblings

14% to running teen adventure camps for childhood cancer survivors and their siblings (they’ve done dogsledding, surfing, and white water rafting camps to name a few)

6% to running the Balding for Dollars campaign
——————————————————————————————

How to donate online:
1. Visit https://secure.bcchf.ca/BFD/team.cfm?BFD=275
2. Click on ‘Donate Now’
3. Choose a shavee to sponsor, or make a general team donation
4. Fill out all of the information and submit the form

The online donation only accepts: Visa, Mastercard and American Express.

Cheques can be mailed to:

BC Children’s Hospital Foundation,
938 West 28th Avenue, Vancouver, BC V5Z 4H4

 

If you would like to join the eent on facebook and invite people you know to donate here’s the link:

http://www.facebook.com/event.php?eid=102944739742963&index=1Help me support childhood cancer and blood disorder patients by donating to the Balding for Dollars program and by joining this event and inviting everyone you know to help raise awareness.

“Balding for Dollars is an event initiated by parents and hospital staff touched by childhood cancer and blood disorders with the goal being; to raise community awareness for childhood cancer and blood disorders, provide funding to support the oncology program at BC Children’s Hospital and support children and their families during and after treatment.”

From now until May 8th I will be gathering pledges to raise money for the Balding for Dollars program. In return I will be shaving my head to support the “bald is beautiful” mandate.

——————————————————————————————
The donations are split up approximately like this:

40% to financially supporting families who have a child with cancer; Balding for Dollars will help out with supplies, medication costs, and transportation costs (especially for families who live outside the Lower Mainland)

20% to pediatric oncology research at BC Children’s Hospital

20% to education bursaries and scholarships for childhood cancer survivors and their siblings

14% to running teen adventure camps for childhood cancer survivors and their siblings (they’ve done dogsledding, surfing, and white water rafting camps to name a few)

6% to running the Balding for Dollars campaign
——————————————————————————————

How to donate online:
1. Visit https://secure.bcchf.ca/BFD/team.cfm?BFD=275
2. Click on ‘Donate Now’
3. Choose a shavee to sponsor, or make a general team donation
4. Fill out all of the information and submit the form

The online donation only accepts: Visa, Mastercard and American Express.

Cheques can be mailed to:

BC Children’s Hospital Foundation,
938 West 28th Avenue, Vancouver, BC V5Z 4H4

Bmt

October 23, 2011 by  
Filed under Community

I had a bmt about 2 months ago for leukemia and have been home for a couple weeks now but am still constantly tired, if anyone has a way of coping with that please let me know

BMT and MDS

September 12, 2011 by  
Filed under Community

Hi everyone.  I hope you don’t mind an older person like me being here… I’m 35 years old, but single and young!  I have MDS and looking to bonemarrow transplant in the near future.  Many other people I’ve spoken to are much older and transplant isnt an option for them.  Just wanted to also thank the writers for including MDS here.  There are very few of us!

Any other MDS young people here who’d like to chat?  I’m not having treatment right now.  Only need transfusions if I have nasty infections, or bleeding.  Platelets are one of my main worries.  Around 20 mostly.  Take care all.  Love to hear from someone.  Jules xo

BOOK WRITTING HELP!

Hi everyone!

My name is Valeria, I actually dont have any cancer, but I am writting a book about it, I really would appreciate if you could tell me your stories so I could take some ideas,

Thank you everybody!

.

brain cancer

July 6, 2010 by  
Filed under Community

i was diagnosed last may and had surgery then radiation and almost a year of chemo only two more months and hopping every thing goes back to normal

Brave Heart- Art2heart

Hi everybody,

My name is Jamie Buchanan. I was diagnosed with brain cancer when I was 14 and I am now 18, celebrating 3 years in remission. My way of giving back has been through art collages. I make them filled with thoughts of, Happiness, Perseverance, Hope, Inspiration, etc. I sell my collages in prints & tee shirts, bags etc. I will be donating 10% of each sales’ proceeds to an organization called i[2]y. It is an organization created to help raise awareness forthe age group of  teens to young adults battling cancer, or in remission. It is a great organization, go take a look at my artwork & Please help!! I have posted both of my websites. :)

http://jayheart.redbubble.com/works

http://www.zazzle.com/jaybraveheart/gifts

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