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August 15, 2013 by  
Filed under Community

This post send by

i have had a headache for the last two weeks if any one has any suggestions please let me no

March 13, 2011 by  
Filed under Community

The 2 cancers’ that I beat were rhabdomyosarcoma in my right jaw muscle and osteosarcoma above my left knee. I also received a blood transfusion after chemo with West Nile virus in it. I contracted West Nile Encephalitis and was a vegetable even unable to talk for 4 months. I had to relearn everything. So if anyone wants to talk about a bad hand dealt to them I am a great listener and I’m pretty sure I know how you are feeling.

March 12, 2011 by  
Filed under Community

we talked tus with transplant team and we r doing the transplant the day i get out of school and ill be in there for the hole summer and next year school year . its hard to go through this be my sister is going to be my caregiver,.

hi my name is jeremiah i am starting a chat line for any one on here it will be a chat line number it is not only for people that went throo cancer but it is for adalts to email if interested in being apart @ jeremiahg20@gmail hope too here from you soon

February 27, 2011 by  
Filed under Community, Coping with Cancer, Survivor Stories

Hey Guys! I’m new to this site so I thought I’d introduce myself.

My name is Rachel, and at 14 years old I was diagnosed with Stage 4 Hodgkin’s Lymphoma. Since then, I’ve gone into remission and then relapsed, so I had to have a stem cell transplant. I’m now 18 and in remission as far as I know, but I just had a CT scan and I’m really nervous about the results. I have this horrible feeling that my cancer’s come back again. I’m trying to be positive but I don’t think I can go through this for a third time.

I just wish I could feel like a normal kid again.

November 6, 2010 by  
Filed under Community, Friends and Family

I THROW MY ZOFRAN IN THE AIR SOMETIMES SAYING AAYYOO… WHERE’D THE BOX GO? This should be made a like on facebook, if you ask me. To confuse people.

If anybody on here is British, add me? If everyone here isn’t British, tell me to go drink tea and play croquet or whatever you think we do.  And if you want someone to talk to (like there aren’t enough lovely people already) then add me.


July 27, 2010 by  
Filed under Community

i hate having leukemia, i can’t do anything anymore. i can’t play baseball and i can’t play soccer. i can’t do what i used to do before all this happened, and worst of all i hate seeing my girlfriend suffer with me. she’s always trying to help me think positive ,but it’s very difficult to do when your in so much pain. Damn, i hate the fact that this is not only affecting me. but it is affecting her as well. why does this happen. !!!!!

April 14, 2010 by  
Filed under Community

I got my test results. They found two cysts in my groin. going to the ogyn (yuck) sometime next week. Hopefullly the pain will go away. I just want it to be next week.

January 10, 2010 by  
Filed under Community

Hi:) mi name is shantae’ im 17 about to be 18 feb 6 i am a cancer survior(Hodgkins Lymphoma i will been in remission for going on 3 yrs YAY

October 27, 2009 by  
Filed under Community

Hey everyone! Good luck at the hospital for those of you who are in treatment! I can’t wait for TLC tonight :)

Sat Feb 5th: Dharma-Rama Retreat!

January 17, 2011 by  
Filed under Community, What's Happening


Teens with cancer- Take a day to get back to your SELF!

A FREE all day retreat for teen cancer survivors ages 14-21 (in-treatment, post-treatment, long-term survivors) held in Rochester, NY.

WHEN: Saturday, February 5th from 9:00a.m.-3:30 p.m.

WHERE: Teens Living With Cancer center at the Al Sigl Center

(1000 Elmwood Avenue; Rochester NY 14620)

WHAT IS DHARMA-RAMA? A day to recapture and renew YOU.

It is a day long adventure for the mind, body and soul.

Participants will be provided with all materials. Breakfast and lunch are included.

Feel uplifted as you try “laughter yoga”…

Feel creative as you work with a professional writer…

Feel empowered as trainers show you how to be fit again…

Feel the rhythm of life again…in a drumming circle!


CALL 585-563-6221 for more info and to reserve your spot!

*This program is made possible through funding from NextGen Rochester

Say hello, all teen with cancer

February 26, 2011 by  
Filed under Community

Soy mamá de un niño, de 14, que tiene leucemia, desde los 9 años y los médicos le dijeron el año anterior, que el tratamiento no funcionó. Ahora está luchando contra múltiples dolores que padece, pero eso no lo hace perder su alegría e ímpetu de la juventud.

I’m a 14 years child’s mom, who has leukemia since 9 years old, and last year, the doctors said him that the treatment didn’t  serve. Now, he is fighting against many pains in all his bones, but he doesn’t lose his happiness and love.  My boy is David Fernando and I want to help me how give support him. Maritza


June 26, 2012 by  
Filed under Community

Ok I got tested for leukemia yesterday. I had almost all the symptoms and I’m scared. No one has called saying I have it or I don’t have it yer. How am I supposed to handle this? Please help me

Scared to death

December 17, 2012 by  
Filed under Community

I’m really sorry but I’m going to first off say I don’t have cancer. Doctors have found nodules n my thyroid and I will shortly have a biopsy. But I scared, I’m scared its cancer, scared I might not even make it. I’m 18 and have so much ahead of me and just to have these thoughts in my head kills me. I guess I came here just looking for reassurance or guidance, and to say that I applaud everyone who is dealing with cancer, you are all heros in my eyes.



i have been having problims with school can sum one on here email me and maybe we can talk on the phone my email is jeremiahg20@gmail.com please lable it tlc and what you are going too talk about thank you

Shingles who has had it?

October 16, 2010 by  
Filed under Community

my life sucks im very sad i have shingles iv never been in so much pain its on my head my neck part of my face and going down my back. who has had shingles what did u have to do? i have reached my life time capacity of crap. tonight is my homcoming and it was also my testing day for tae kwon do but instead of doing all that im stuck in a hospital bed on a diff. floor with nurses i dont know and who dont know me i dont like this i was too sick to go to homecoming last year and two weeks later found out i had cancer. im so sad and have been crying off and on all day long yesterday too…. my mom says to find the best of something at the end of the day i havent found anything 1. im in pain 2. im itching like crazy 3. my shingles are blistering 4. i had to get blood drawn and a iv put in cause i already have had my line taken out 5. i want to be a normal highschool kid dancing the night away but obviously im not 6. ive been practicing harder then ever for my tae kwon do test 7. im on so many pain drugs i think im high jk lol but i just need advice from people who know and understand whats going

Siblings group project

Kelsey Harper, a doctoral student at the California School of Professional Psychology, is designing a support group to empower, strengthen, and support siblings of children and teens with cancer.  Enhancing resilience in siblings of children with cancer will provide them with the strength and tools necessary to effectively cope with the variable, ambiguous, and unpredictable process.

 This project needs adults 18 years or older, who are a member of a family currently experiencing recent diagnosis, treatment, or recent remission within the last two years.  You can offer your ideas with this important group of children, and your family offers your help in building a play group special for children like yours, helping give much needed rest, fun, and growth to siblings of children with cancer.

 If you can participate, please follow this link to the online Powerpoint presentation outlining the project and the curriculum (http://www.slideshare.net/harperk2/enhancing-resilience-in-siblings-of-children-with-cancer?from=share_email).  After viewing the presentation, please follow this link to an online survey to answer questions about you and your family, your feedback on the curriculum, and additional comments about the needs of families like yours (http://alliant.qualtrics.com/SE?SID=SV_8vQgHCC5h6Ut2K0).    Please have only one person per family complete the survey on behalf of the family.  Thank you for your help with this important project.


Presentation:  http://www.slideshare.net/harperk2/enhancing-resilience-in-siblings-of-children-with-cancer?from=share_email

Survey:  http://alliant.qualtrics.com/SE?SID=SV_8vQgHCC5h6Ut2K0



Please contact Kelsey Harper at kharper@alliant.edu for questions or more information.

So…sick… I hate chemo treatments.

My name is Caleb. I’m 17, and I have Leukemia. I was diagnosed almost a month ago now, and I’m starting my Chemotherapy. Yesterday afternoon, I started my second round.

Thank God the first round was easy on me. This second round is really kicking my butt.

I didn’t feel really well yesterday morning, anyways. And I had the option of either having the treatment this morning, or yesterday afternoon at 4, and I opted for yesterday afternoon, because I had a track meet this morning.

I got there around 4:00, and they hooked me up. I sat in the seat, and waited for it to finish dripping.

Halfway through, I got a HUGE headache. I mean, this was the worst pain I’ve ever had in my head. It felt like someone was hitting me in the head with a hammer.

I finished and went home about 2 hours later, after talking to some really close friends in the treatment place.

I got home, and went to lie down and watch a movie. My head was still pounding.

This morning, I woke up, and automatically felt sick. I stood up, and I was extremely dizzy. I spent the better part of the morning in and out of the restroom, and sleeping on the bathroom floor. I hate that.

I was usually pretty healthy. I never got sick before all of this happened, and I’m not used to it. I don’t like it.

After my numerous restroom trips, I finally worked up enough strength to make it down stairs to say good morning to my amazing mother, and I sat down at the kitchen table, and laid my head down. My mom felt my forehead, and took my temp and all that. Granted- she’s not used to this quite yet, either. She’s used to healthy kids, I mean, none of my 5 brothers have ever had anything that compares to this, and neither has my sister. Quite frankly, neither have I. She’s not very fond of us being sick at all, I mean, the flu season is a terrible time for her! I was running a fever of like… 102, I think. And my head was still killing me.

She sent me to lie on the living room couch, and when I laid down, I turned on Fired Up!, and soon fell asleep.

I woke up about an hour later, and I felt a HUGE surge of nausea, and I leapt for the restroom.

See, now, this is where my story gets pretty pitiful. I hate being sick. SO much. I absolutely despise it. But I’m smart enough to expect it with Chemo.

So, I spent a lot of my afternoon throwing up, and falling asleep, and throwing up, and falling asleep again, and on and on.

Needless to say, I didn’t have a very good day.

I hate Chemo treatments.

Who’s with me?

so far so good

May 31, 2013 by  
Filed under Community

This post send by Ethan Mobley

well I\\\’m finished with therapy for the 16 days. Having a hard time when I want to leave the wrap off from my surgery to remove my bone cancer in the leg. I keep thinking people will be disturbed about it or not talk to me… so what do yall think,should I just try it for one day and see what happens?

Stage IIB Seminoma

September 2, 2011 by  
Filed under Community, Survivor Stories


Starting a website

June 3, 2010 by  
Filed under Community

im starting a website about cancer awarness after i was diagnoised i need your ideas info and anything you think should go on the website its all about teen cancer please leave your comments about what you think should be in here thanks soooooo much

<3 sarah

Staying Fit

August 12, 2011 by  
Filed under Community

Okay, recently I was playing with some friends running around in a field and in nearby woods and my family told me that I wasn`t allowed because I could trip and fall and get hurt – (well boo - hoo you guys think I care if I fall). I wish I could just feel partially normal for a little while, even if it only is for an hour or so. Pretty much all I `m allowed to do is walk a little,breath,eat,talk, and lay around on the couch. Now all this and I can`t even play my fall school sport – volleyball! The chemo makes it so I`m so out of shape and I `ve lost most of my muscle mass. I`ll be lucky if I can get a lot playtime in the winter for basketball. Sorry if I sound whiney but, is anyone else having similiar feelings or issues.

Summer of the Woodchuck – My Summer With A Broken Jaw and Ovarian Cancer(Part 1.)

August 3, 2011 by  
Filed under Community

Ya know, I never would`ve guessed that I would get cancer and especially ovarian cancer – I mean who`s heard of a 14 year old being diagnosed with it, I certainly hadn`t. It all started when I broke my jaw mowing the lawn June 5th, 2011. I was using the rider mower and all the sudden the lawn mower was being pulled towards our 5 foot tall retaining wall and I couldn`t stop it. The mower went down with me on top of it and while the mower landed straight up and down I fell and rammed my jaw on our cement basement wall. Fun, huh? Well, it bleed and bleed and I found myself in an trans – am going to a non – local hospital to have surgery.

The day of my surgery a doctor and social worker came in my hospital room and asked my parents to leave. They then told me I was pregnant, but I wasn`t, I would never do anything that could cause harm to my veterinary college future and I told them that and ya know what…..they didn`t believe me. They just kept telling me that I was and I couldn`t believe it and then they thought I would`nt want to tell my parents and just keep it a secret for a while, but I told them I wanted to tell my parents right away so wee could figure  out what was happening.

My parents didn`t believe it either and they pushed for an ultrasound after my surgery. Numerous OB/GYN doctors came in to see me  and asked me all the same questions. The next day I had the ultrasound  and the doctors found a 3.5 x 4.4 cm tumor on my right ovary.

Supporting your teen

August 18, 2009 by  
Filed under Community, Friends and Family

Hi, I’m a parent of a teen that was diagnosed with ALL

4 years ago.  We will hit that magical 5 years in remission

 mark next July, 2010.  While that date is always in my

mind, there have been many stages we’ve gone through

in between — luckily no readmittance to the hospital!

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