How to Cope when a family member has Hodgkins Lymphoma

July 19, 2013 by  
Filed under Friends and Family

This post send by Sarah

Hi There!

I am a 22 year old female, but I am going to share the story of my 14 year old closest cousin. This may help you, as a cancer patient; or it may help anyone who has someone close to them that has been touched by cancer.

It was in March 2012 when my cousin found a small bump on her chest. The bump was hard and very painful. After X-rays were complete, the doctors assured her and her family that it was nothing to be concerned about.

She continued life as normal.

In December 2012, my cousin began experiencing extreme pain in her knee. She would wake up crying at night, and had even had a hard time walking. She was in so much pain that she was not able to eat – she lost 15 pounds!

By the end of January, the doctor\’s had realized the first bump on my cousins chest, was a cancerous tumour. It had spread to her leg, where a tumour developed and spread across her whole thigh (femur). The doctor\’s originally though my cousin would be diagnosed with a Sarcoma, a form of bone cancer.Her prognosis was not good.

After her biopsy, the doctor\’s realized that my cousin had Hodgkins Lymphoma. She had a very aggressive form of lymphoma, and needed intensive chemotherapy.

When our family found out that my cousin had cancer, we all felt a whirlwind of emotions. Her father would not leave his room- he was even getting sick to his stomach. Her mother had to put on a strong and smiling face to make sure my cousin and her siblings were not scared. My whole family put a strong face on for my cousin, but when we were alone – we would break down and cry our eyes out.

My cousin would have to spend 6 months as an inpatient in the hospital, because her chemotherapy made her at such high risk from infection, she was not allowed to go outside at the hospital or anything.

The night before my cousin was admitted, we spent the night hanging out at her house. She told me how scared she was to go into the hospital, she was so scared of the side effects of chemotherapy.

The doctor\’s warned us that she was going to get extremely ill and her hair would fall out very quickly.

As my cousin started chemotherapy, we waited… and waited.. and waited for her to begin getting very sick.
It did not happen! My cousin was on chemotherapy 24 hours a day for a few days, and then and then had chemoterapy every 12 hours. As soon as her counts were back up, they would start chemotherapy again.
My cousin did not throw up ONCE during her whole treatment. She became tired and would often have head aches, but she did not experience many common side effects of chemotherapy. She lost her hair around 2 months in.

After 3 months of chemotherapy, my cousins cancer was completely gone. She has now been in remission for almost 3 months.

Throughout the entire experience, my cousin was so strong and so positive – I truley believe that this is why she recovered so fast.

I remember talking to her about her hair falling out. I asked her if she was nervous.

She said, \"Well I can\’t do anything about it, I am not going to sit and cry about it\"

She has truly been an inspiration to me. With 8 years between us, I have learned SO much from her.

When you or someone you know is going through treatment, it is so important to find strength from those around you. Stay strong, and remain positive!

We are in a day and age, where anything is possible! Cancer treatment has advanced SO much, and there are a lot of ways to manage the side effects of chemotherapy and radiation!

When I first found out my cousin was diagnosed, I could not bare to see her. All I would do is cry.

When I finally built up the courage to face her, I felt SO much better. She brought out a strength in me I never though I had. We spent almost every day in the hospital together and became SO close.

There were many times throughout the journey where members of my family would break down, that is normal. It felt good for them to let their emotions out.

Although you might not be the one experiencing cancer, it is okay to feel upset, mad, or anxious. It is a compeltely normal way to react!

The journey that I have experienced over the past year has changed my way of life, I am now an employee at a local cancer centre, and spend time volunteering with cancer patients. I have found meaning in what happened to my cousin, and i love her so much!

I hope that those of you suffering can do the same.

If anybody would like advice, or simply would like to talk, please reply to this message.

My Dad

June 18, 2013 by  
Filed under Friends and Family

This post send by Megan

I\\\’m 16 years old.I was in the 7th grade when my dad was first diagnosed with Bile Duct cancer. It was the worst thing ever. Last summer he stared not feeling good again, loosing weight, loss of appetite, tired all the time and his skin had a yellow tint. Went to the doctors many of times. They said it came back and the only thing left to do was chemotherapy which would only make him live longer. The chemo was working for a while. My last day of school for summer I get the worst results ever. The chemo quit working. The cancer has spread to many lympode nodes. There\\\\\\\\\\\\\\\’s only one chemo left to try he starts it tomorrow. All I do is cry.

My Dad

June 18, 2013 by  
Filed under Friends and Family

This post send by Megan

I\’m 16 years old.I was in the 7th grade when my dad was first diagnosed with Bile Duct cancer. It was the worst thing ever. Last summer he stared not feeling good again, loosing weight, loss of appetite, tired all the time and his skin had a yellow tint. Went to the doctors many of times. They said it came back and the only thing left to do was chemotherapy which would only make him live longer. The chemo was working for a while. My last day of school for summer I get the worst results ever. The chemo quit working. The cancer has spread to many lympode nodes. There\\\\\\\’s only one chemo left to try he starts it tomorrow. All I do is cry.

Family and cancer

March 7, 2013 by  
Filed under Friends and Family

I’ve never posted on here before, but I think it is time to talk to some people who know how I feel. I was diagnosed with Hodgkins lymphoma when I was 17, and now am 20, at college, cancer free, but technically in remission for 2 years now. I was the first person in my family to ever have cancer and I thought I’d be the last. My family and I have been moving on from cancer, and now we find out that my grandmother has cancer. We are so close with her, and I can’t explain how upset just the fact itself that she has cancer makes me, but what really hurts is to see my mom go through this again. I feel guilty and helpless because she has to see the two women she loves most experience cancer, and I can’t help her because I am one of them. I don’t understand how this can happen. How God would do this to our family. I hate that I hurt so many people, and just as they recover from my cancer, we have to worry about someone else’s cancer. I don’t know how to help anyone, or what to say/do. I am so confused and disappointed. I thought this was all behind us. I know that this happens to other people too, but you never think it can be you, until it is. Hopefully at least one person can relate.

Lil Ducky’s Journey- Long Road

January 17, 2013 by  
Filed under Friends and Family

Okay, this title sounds weird, but out of respect for my friend, I changed her name, just in case.

It was back in November when I found out my best friend (aka, Lil Ducky)has leukemia. Its been a tough road already. I thought this would bring us friends together as a united front, but its only tearing us apart. There is more aspects here that are going to be difficult than I thought. We’re all there for her though when it counts, and thats all that matters.

I’m so thankful I have been able to visit her, and sometimes we can get so caught up in what we’re doing, it’s like nothing is wrong. But of course, everything is. My lil duck has the misfortune of suffering generally all the RARE side effects of AML leukemia. She never stops telling me how shes going to kick it’s butt though, and can’t wait for summer.

Since we have found out, we have started a committee for fundraising and it’s amazing how the community has come together for this beautiful family. I thank God we live in Canada, were we do not have priate health care, but I’m sure with the help from these amazing people, we would find a way anyway.

Anyway, I’ll probably be posting more, and if anyone ever wants to talk about ANYTHING, say so in the comments, and I’ll tell you my email or we can connect somehow. :)

~Taylor

Rachels’ Story

January 10, 2013 by  
Filed under Friends and Family

My name is Rheanan, and my best friend Rachel was just diagnosed with stage two leukemia. She won’t give me many details, but my friends and I are all her best friends, and we just found out tonight. We aren’t handling it well at all. How do you cope? How do you deal with something you never dreamed would happen to your best friend?

Lost.

November 12, 2012 by  
Filed under Friends and Family

Hi, my name is Taylor, and three days ago, I received one of the worst texts in my entire life. It was from my best friend, who I’ll refer to as lil ducky (Our nicknames for each other are lil ducky and ducky). It read; “I have some bad news, I have leukemia.” She is fifteen. My heart dropped and I went completely numb. I had no idea it was possible to be shaking so hard yet feel nothing. She had been sick for a few weeks, and I had even skipped out on Halloween so we could hangout at her house together.

At this time, I do not know many details, but am terrified. And then I think; :”If I feel like this, how must she feel?” Her family has been through so much already with her brother, who also has countless health issues as well. She is one of the most supportive, possitive and resilient people I have ever met.

All I want to do is see her, but I cannot until her first round of chemo is over.

Anyone have any advice or info? I’m so lost. It would be dearly appreciated.

nick my bf

October 21, 2012 by  
Filed under Friends and Family

my name is kate nick my boyfriend that i was with for 3 years since i was 16 he died in june it been like 5m sicne he died he had leukim
i miss him so bad i want to be with him but i cant i just found out i am haveing his baby i know i am 18 but i did love him and i wanted to spend my life with nick but i cant it hurts that i cant see him but i am haveing his baby that makes me to be happy

hi guys!!

June 22, 2012 by  
Filed under Friends and Family

how’s everyone doing / feeling?

Sophie Grace

April 22, 2012 by  
Filed under Friends and Family

My name is Oliver and my girlfriend of one year died from cancer earlier this year. Her name was Sophie and she was just 17. We met at school last year and began dating. She was beautiful. We had an amazing time together until, in November 2011, she was diagnosed with cancer. She had a tumour on her brain which was inoperable, and she was told that she had 3 months to live. She refused treatment, as she wanted the best quality of life she could get. She had received offers from universities to study French this year, and she was set to receive 3 A grades. She was a fabulous pianist and had received a diploma for it. She was also Head Girl.
We had always talked about getting married and having kids. So On Christmas Day 2011, I proposed to her. We got married in January and all our family, friends and teachers came. She looked stunning, as if she didn’t have an illness at all. I took her to London for our honeymoon. That was the best, happiest day of my life. She died on the 20th of Feb 2012 in her bed with her family all around her. She was so gaunt and fragile, but at the same time, at peace. Her battle with cancer was short, painful but she died with dignity. I will always remember how she took the news. She wanted to make the most of her numbered days and she couldn’t bear the thought of her family and I being miserable. Her funeral was just as beautiful as our wedding. In the same church, just over a month later.
Her cancer was discovered too late. She had been suffering from chronic migraines, blurred vision, fainting episodes and cold like symptoms for a month, she only went to the doctor when she had a seizure at school one day. I loved her so much. And still do. I’m going to uni this year without her and I can’t believe that I am a widow at 19.
I will never forget her.

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