Possible Brain Tumor thoughts

July 11, 2012 by  
Filed under Newly Diagnosed

Hey!
I’m Ali and I just got the news last Monday that it is possible for me to have a brain tumor. I was in a coma 4 years ago due to another illness that I have, and symptoms now are just starting to show up, behavorial changes, anger and frustration issues, issues with filtering speech, and also some issues regarding digestion, heart rate, breathing…
I’ve been referred to another doctor, and am just waiting to get the call so I can go see him. He’s most likely going to order another MRI (I had one done a few years ago) to check and see whether it is a tumor caused by some scar tissue that I had from my coma, or possibly an area of my brain that has died.
I’m going through a lot of emotions right now, but for the most part I think I’m doing ok. It’s hard, but I think it’s also a relief that now we’ve at least narrowed it down to what organ it is. (I’ve been undiagnosed for 3 years)
It’s confusing to feel all these things at once, and I’m not sure I want to know now. What if it is a tumor, and it’s cancerous and I’ll need chemo and radiation? If it’s not a tumor, what sort of treatment do I get for that? There’s a lot of questions in my head right now.
I don’t really know if I belong on this site yet, but I just thought I’d post and introduce myself!

I’m 18 years old and I have been diagnosed with Hodgkins lymphoma for 2 weeks now

July 11, 2012 by  
Filed under Newly Diagnosed

I am just looking for some people to talk to who on some level know what I am going through :/
I have skype – ellieisnotonfire
and we can go from there :D
I don’t mind talking to anyone really

osteosarcoma- staying strong, but struggling.

July 10, 2012 by  
Filed under Newly Diagnosed

hello! my name is angeline. i am an 18 year old university student who just got diagnosed with osteosarcoma about 3 weeks ago. i have a positive spirit, but staying strong for my friends and family is starting to tear me down. i would really appreciate some support and a friend to talk to, especially a teen/young adult. i have many adults who want to talk, but it just isn’t the same. if anyone is out there wanting to make a friend, please contact me. i would really appreciate some understanding. thank you.

osteosarcoma- staying strong, but struggling.

July 10, 2012 by  
Filed under Newly Diagnosed

hello! my name is angeline. i am an 18 year old university student who just got diagnosed with osteosarcoma about 3 weeks ago. i have a positive spirit, but staying strong for my friends and family is starting to tear me down. i would really appreciate some support and a friend to talk to, especially a teen/young adult. i have many adults who want to talk, but it just isn’t the same. if anyone is out there wanting to make a friend, please contact me. i would really appreciate some understanding. thank you.

Osteosarcoma- staying strong, but struggling.

July 10, 2012 by  
Filed under Newly Diagnosed

hello! my name is angeline. i am an 18 year old university student who just got diagnosed with osteosarcoma about 3 weeks ago. i have a positive spirit, but staying strong for my friends and family is starting to tear me down. i would really appreciate some support and a friend to talk to, especially a teen/young adult. i have many adults who want to talk, but it just isn’t the same. if anyone is out there wanting to make a friend, please contact me. i would really appreciate some understanding. thank you.

Osteosarcoma- staying strong, but very scared.

July 10, 2012 by  
Filed under Newly Diagnosed

hi! my name is angeline and i was diagnosed with osteosarcoma about 3 weeks ago. i am eighteen and have finished my first year at the u of a.i have a positive spirit but there are nights where i can’t help but feel the weight of this cancer on my shoulders. if anyone would like to talk, please contact me! i am in desperate need of someone to understand how i feel and what i am going through.thank you.

im scared

July 7, 2012 by  
Filed under Newly Diagnosed

Hi there

My name is Jonaveze, im 18 years old and about 3 weeks ago i was diagnosed with a rare case of lymphoma that the doctors claim to not have much information. I was living in Dubai and ha to return to my home country when I got sick. It took them a long time to find out that it was cancer. I keep all my feelings inside coz i know noone understands, so I was hoping there was someone who understands, who i can talk to. I start my first chemo session on th 18th, im terrified, im scared of losing all my hair, i hate how people look at me.

feel free to give me ur bbm pins or skype names if you wanna talk

Thyroid Cancer

May 3, 2012 by  
Filed under Newly Diagnosed

Hello! My name is Renee R. I am 14 years old. This year I was diagnosed with type 1 #diabetes, severe scoliosis and most recently #thyroidcancer. (Ironically I hate needles)! I will be going down to the #mayo clinic on Tuesday, and will get a full neck dissection. What do you guys think of #mayo? It seems like a great place: best in the country and all. I have heard of presidents and royal people going there! I am scarred of going though: I am not friends with iv’s & the surgery will be huge. :( . These last few months have been really hard on me; i have to get back treatments which really hurt & the diabetes etc. I really appreciate comments! If you want to contact me @ reneeroth8@gmail.com

Thyroid Cancer

May 3, 2012 by  
Filed under Newly Diagnosed

Hello! My name is Renee R. I am 14 years old and was recently diagnosed with thyroid cancer and cancerous lymph nodes. I will be getting a full neck dissection this coming Tuesday. I will be going down to mayo clinic. I HATE needles and iv’s, though I was diagnosed with type 1 diabetes this year. Iv’s I especially hate because the first time I got one was not a good experience or close to it. My dad had thyroid cancer twice. I also have severe scoliosis which I got this year, and I go to Clear Institute 2 times a week to correct that. I also do 2 hours of exersices @ home everyday. Anyways, I am really scared about the thyroid cancer! I appreciate comments. Also, if you want to contact me for any reason reneeroth8@gmail.com

Emma’s Journey

March 22, 2012 by  
Filed under Newly Diagnosed

My daughter Emma was diagnosed with Ewing’s Sarcoma this last February 2012. She has had a painful long road up to her diagnosis. We are Military and had moved to our current location in Bellevue, Nebraska over the summer of 2011. Emma’s symptoms started in late October. She starting presenting with back pain. After several visits to the Doctor they decided to send her to physical therapy for a pulled muscle. After some weeks had gone by she was getting no relief from Physical Therapy and inflammatory medications. We returned back to the Doctor for more solutions to her pain. Along with her back she had started to notice some hip pain as well. Once again we were referred to the Physical Therapist for further reconditioning. The physical Therapist was puzzled to her diagnosis from her Doctor. She wasn’t getting better and was having more pain and decrease range of motion happening in her leg. Once again we were back in the Doctors office. By now Emma had missed some days from school due to leg weakness, back pain and leg pain. I didn’t know what was happening to her but I did know that whatever it was it was ruining her ability to function in everyday daily activities. She was starting to isolate herself from activities with her friends and things at school. We revisited the Doctor and this time I was armed with questions and demands. The Doctor had ordered a MRI of her back to see if she had a herniated disc and a x-ray of her hip. Her hip pain was becoming unbearable at times. The x-ray came back fine, no noticeable defects or problems. Meanwhile the Doctor had referred us to a Sports Medicine Doctor. We had to wait once again for the appointment. There was no urgency at the time. The Sports Medicine evaluated her and was in agreement with the Pediatrician with it being a muscle problem. He decided to order more views for the MRI. Her back,pelvis,hip. Once again we waited for that appointment, meanwhile she was continuing to be in pain. It was finally appointment day for the MRI. A couple hours later I had received a phone call stating they see some sort of something on her MRI in her Femur. It was possibly a fracture. The following morning we went to the clinic for a CT scan and after her scan we sat for several hours with no news of what is the next step. The Pediatrician, Sports Med Doctor and Radiologist were all in agreement that she was to go immediately to Children’s Hospital in Omaha. They were unsure of what they were looking at on the scans. After several hours and many Doctors later they decided to release her from the hospital. The Hospitalist referred her to a Orthopedic Surgeon and a Pediatric Rhuematologist and all out patient. She went through more tests that following Monday. Between the Orthopedic Surgeon and the Rhuematologist she was diagnosed with a Rhuematological disease. Emma’s pain was very aggressive and it was not consistent with the diagnosis. Over several weeks Emma was getting worse and basically couldn’t walk anymore. I was taking her in to the ER for pain & dehydration. Finally after several ER visits they admitted her. I was so relieved! Finally someone was seeing how much this girl was suffering! We needed a bone biopsy to rule out bone infection so she could take the much need steroids to control her inflammation in her leg which would help with the leg pain. The Pathologist could not give a diagnosis. Still in question what was causing all her pain the Hospitalist called in the Hem/Oncology Doctor to evaluated Emma and all her test to see if they felt they had enough reason to perform another biopsy, this biopsy was more intrusive then the last. It would leave her with a 2 inch scar on her thigh and also preforming other biopsies of bone marrow. They performed the biopsy of her Left femur and it was positive for Ewing’s Sarcoma. Finally we have a diagnosis! We were devastated but now she can be treated with the medications she needs. You are told it’s something else and after awhile you believe it. Emma started her aggressive Chemo treatments. We are all trying to understand why her journey to her diagnosis took so long. With Emma’s story I can only hope that another family doesn’t have to go through what we did and watch for so long their child in pain. She has a long road ahead of her. Reading other stories of cancer survivors gives us hope that she too can beat this!

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