Siblings group project

Kelsey Harper, a doctoral student at the California School of Professional Psychology, is designing a support group to empower, strengthen, and support siblings of children and teens with cancer.  Enhancing resilience in siblings of children with cancer will provide them with the strength and tools necessary to effectively cope with the variable, ambiguous, and unpredictable process.

 This project needs adults 18 years or older, who are a member of a family currently experiencing recent diagnosis, treatment, or recent remission within the last two years.  You can offer your ideas with this important group of children, and your family offers your help in building a play group special for children like yours, helping give much needed rest, fun, and growth to siblings of children with cancer.

 If you can participate, please follow this link to the online Powerpoint presentation outlining the project and the curriculum (http://www.slideshare.net/harperk2/enhancing-resilience-in-siblings-of-children-with-cancer?from=share_email).  After viewing the presentation, please follow this link to an online survey to answer questions about you and your family, your feedback on the curriculum, and additional comments about the needs of families like yours (http://alliant.qualtrics.com/SE?SID=SV_8vQgHCC5h6Ut2K0).    Please have only one person per family complete the survey on behalf of the family.  Thank you for your help with this important project.

 

Presentation:  http://www.slideshare.net/harperk2/enhancing-resilience-in-siblings-of-children-with-cancer?from=share_email

Survey:  http://alliant.qualtrics.com/SE?SID=SV_8vQgHCC5h6Ut2K0

 

 

Please contact Kelsey Harper at kharper@alliant.edu for questions or more information.

Thyroid cancer

My name is Victoria, I am 18 years old. Three days ago I found out that I have thyroid cancerous. Its all pretty scary and me and my family are still trying to deal with all of it. If any one has any advice it would be greatly appreciated.

Thanks

So…sick… I hate chemo treatments.

My name is Caleb. I’m 17, and I have Leukemia. I was diagnosed almost a month ago now, and I’m starting my Chemotherapy. Yesterday afternoon, I started my second round.

Thank God the first round was easy on me. This second round is really kicking my butt.

I didn’t feel really well yesterday morning, anyways. And I had the option of either having the treatment this morning, or yesterday afternoon at 4, and I opted for yesterday afternoon, because I had a track meet this morning.

I got there around 4:00, and they hooked me up. I sat in the seat, and waited for it to finish dripping.

Halfway through, I got a HUGE headache. I mean, this was the worst pain I’ve ever had in my head. It felt like someone was hitting me in the head with a hammer.

I finished and went home about 2 hours later, after talking to some really close friends in the treatment place.

I got home, and went to lie down and watch a movie. My head was still pounding.

This morning, I woke up, and automatically felt sick. I stood up, and I was extremely dizzy. I spent the better part of the morning in and out of the restroom, and sleeping on the bathroom floor. I hate that.

I was usually pretty healthy. I never got sick before all of this happened, and I’m not used to it. I don’t like it.

After my numerous restroom trips, I finally worked up enough strength to make it down stairs to say good morning to my amazing mother, and I sat down at the kitchen table, and laid my head down. My mom felt my forehead, and took my temp and all that. Granted- she’s not used to this quite yet, either. She’s used to healthy kids, I mean, none of my 5 brothers have ever had anything that compares to this, and neither has my sister. Quite frankly, neither have I. She’s not very fond of us being sick at all, I mean, the flu season is a terrible time for her! I was running a fever of like… 102, I think. And my head was still killing me.

She sent me to lie on the living room couch, and when I laid down, I turned on Fired Up!, and soon fell asleep.

I woke up about an hour later, and I felt a HUGE surge of nausea, and I leapt for the restroom.

See, now, this is where my story gets pretty pitiful. I hate being sick. SO much. I absolutely despise it. But I’m smart enough to expect it with Chemo.

So, I spent a lot of my afternoon throwing up, and falling asleep, and throwing up, and falling asleep again, and on and on.

Needless to say, I didn’t have a very good day.

I hate Chemo treatments.

Who’s with me?

16 years old newly diagnosed,

May 20, 2010 by  
Filed under Community, Newly Diagnosed

Hi,

My name is Rachel and I was diagnosed with cancer two days ago, on May 18th 2010. It all started around march break. I was having pains in my abdomen, but thought it was a side effect of the medication I was already on. After a visit to my doctor, I was sent to emerge with a suspected appendicitis. After a CAT scan, I was diagnosed with an ovarian cyst the size of a football, that was hiding very well since i only weighed around 115 pounds. The cyst was removed through lower abdominal surgery, and my ovary  was removed as well.

I waited 6 weeks for my checkup, thinking that if it had gone this long without any contact, that it was just a regular cyst and everything would be fine. At the six week mark, the surgeon told me that the cyst was a dermoid cyst, an immature teratoma in stage 2 and that I woulds require further treatment.

I’m supposed to start chemotherapy this summer, and though I’m very frightened, I can still imagine much worse things.

Newly Diagnosed and 16

April 3, 2010 by  
Filed under Community, Newly Diagnosed

Hello My name is Gabe, and I was 16 when I found out found out I had cancer. It started at the beggining of last christmas break (2009). I came home from my last day of high school finals and took a nap when I woke up I was in unbearable pain. I ended up going to the hospital to find out I had appendicitis, they took me in to remove it and afterwards said that I had what they thaught was a complex ovarian cyst caused by the appendicits and that it should go away though they seemed a little antsy. I was told to follow up though… and when I did I found out that I actually had a stage one Epithelial tumor of the ovary (I had been having bloating and urinary issues as well). I recently had a salpingo-oophorectomy and am feeling better. Hoping I won’t have to go through chemo and that it will not rcurr in the left ovary. I’d loved to talk to anyone going though something similar. I am told it isn’t really considered a teen cancer but that it can occur in teens.

BOOK WRITTING HELP!

Hi everyone!

My name is Valeria, I actually dont have any cancer, but I am writting a book about it, I really would appreciate if you could tell me your stories so I could take some ideas,

Thank you everybody!

.

15-Years-Old and Newly Diagnosed

March 1, 2010 by  
Filed under Newly Diagnosed

Hey everyone. My name is Nicole and I live in Maine. Two days ago I was diagnosed with 2 different kinds of cancer, leukemia (ALL), and Ewing’s sarcoma. My doctor told me it’s really rare to have two types, which I guess makes sense – it’s rare enough to have just one! I’m starting chemo tomorrow, and I’m pretty scared. I know a little about what to expect, since I’ve been researching, but I’d like some input from you guys (and girls!), too. I’m really worried about some of the side effects, especially since I also have Chronic Lyme Disease, so I’m on antibiotics for at least the next year already. I’m just really scared, so any support I could get would help a lot! Thanks! :)

New Leukemia Patient. Struggling with Chemo.

February 19, 2010 by  
Filed under Newly Diagnosed

I am Makayla. I live in NY. I have been newly diagnosed with ALL. I have been on heavy chemo for two weeks now. Please help me with support. I have been getting lots of bloody noses and coughing up blood. Also throwing up blood. My doctor says it is just a side effect. but I dont believe her. Any adice? I am 14 BTW.

im 19 with ALL leukemia

September 25, 2009 by  
Filed under Coping with Cancer, Newly Diagnosed

hey,

my name is natalie stone, i was diagnosed with All in june 09 and have since gone into remission. im looking for someone around my age whos going through or has gone through what i am.

natalie

Here is a link to a kid’s story from youtube

hey everyone

I found this kid on youtube when my friend showed me the video. He could probably use some support, so that means you TLC! Please check it out, I think he would love to here from you all.

http://www.youtube.com/user/AlyxJW

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