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August 15, 2013 by  
Filed under Community

This post send by

i have had a headache for the last two weeks if any one has any suggestions please let me no

March 13, 2011 by  
Filed under Community

The 2 cancers’ that I beat were rhabdomyosarcoma in my right jaw muscle and osteosarcoma above my left knee. I also received a blood transfusion after chemo with West Nile virus in it. I contracted West Nile Encephalitis and was a vegetable even unable to talk for 4 months. I had to relearn everything. So if anyone wants to talk about a bad hand dealt to them I am a great listener and I’m pretty sure I know how you are feeling.

March 12, 2011 by  
Filed under Community

we talked tus with transplant team and we r doing the transplant the day i get out of school and ill be in there for the hole summer and next year school year . its hard to go through this be my sister is going to be my caregiver,.

hi my name is jeremiah i am starting a chat line for any one on here it will be a chat line number it is not only for people that went throo cancer but it is for adalts to email if interested in being apart @ jeremiahg20@gmail hope too here from you soon

February 27, 2011 by  
Filed under Community, Coping with Cancer, Survivor Stories

Hey Guys! I’m new to this site so I thought I’d introduce myself.

My name is Rachel, and at 14 years old I was diagnosed with Stage 4 Hodgkin’s Lymphoma. Since then, I’ve gone into remission and then relapsed, so I had to have a stem cell transplant. I’m now 18 and in remission as far as I know, but I just had a CT scan and I’m really nervous about the results. I have this horrible feeling that my cancer’s come back again. I’m trying to be positive but I don’t think I can go through this for a third time.

I just wish I could feel like a normal kid again.

November 6, 2010 by  
Filed under Community, Friends and Family

I THROW MY ZOFRAN IN THE AIR SOMETIMES SAYING AAYYOO… WHERE’D THE BOX GO? This should be made a like on facebook, if you ask me. To confuse people.

If anybody on here is British, add me? If everyone here isn’t British, tell me to go drink tea and play croquet or whatever you think we do.  And if you want someone to talk to (like there aren’t enough lovely people already) then add me.


July 27, 2010 by  
Filed under Community

i hate having leukemia, i can’t do anything anymore. i can’t play baseball and i can’t play soccer. i can’t do what i used to do before all this happened, and worst of all i hate seeing my girlfriend suffer with me. she’s always trying to help me think positive ,but it’s very difficult to do when your in so much pain. Damn, i hate the fact that this is not only affecting me. but it is affecting her as well. why does this happen. !!!!!

April 14, 2010 by  
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I got my test results. They found two cysts in my groin. going to the ogyn (yuck) sometime next week. Hopefullly the pain will go away. I just want it to be next week.

January 10, 2010 by  
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Hi:) mi name is shantae’ im 17 about to be 18 feb 6 i am a cancer survior(Hodgkins Lymphoma i will been in remission for going on 3 yrs YAY

October 27, 2009 by  
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Hey everyone! Good luck at the hospital for those of you who are in treatment! I can’t wait for TLC tonight :)


July 20, 2013 by  
Filed under Community

This post send by Mafe

I really don\’t know what you\’re going through but if you want to talk I\’d love to listen to you. We can talk about anything so yeah if you want Email: Lovelyf15@hotmail.com Bye x ☺

Team In Training (TNT), The Leukemia & Lymphoma Society’s (LLS) groundbreaking charity

February 2, 2010 by  
Filed under Community

Hello All, Gregg here, I am looking to raise money from the outside world to help in the fight of YOUR FIGHT.  Your the one struggling with this nasty disease, and I don’t think you should be. I think you should be free to go anywhere you want, do what you want AND EAT all that you can stuff down your throat and enjoy every bite of it. Instead of being forced to live like you currently are.  My heart goes out to you all.  You are a hero in your own right. If only more people in the world knew what you are truly battling every day. Makes me look like a peon. I’m an American Solider, I’ve gone to Iraq. But never lifted a weapon against a soul and never hope to.  But i will do what I can to fight the fight for YOUR LIFE.

May God bless you in your valient Fight.


Team In Training (TNT), The Leukemia & Lymphoma Society’s (LLS) groundbreaking charity sports training program, has reached a remarkable milestone of raising $1 billion to support blood cancer research and patient services.

For more than 21 years, TNT has grown to become an unparalleled charity endurance training program. More than 420,000 participants, from first timers to seasoned athletes, have trained with TNT and achieved their best at marathons, half marathons, triathlons, 100-mile century bike rides and hiking adventures.

Train with the best to meet your challenge!

TNT is the world’s first, best and largest charity sports training program – and the only one to offer a full complement of exciting, sports training options.

Looking to join in the fight for those who can’t at this time do what we are trying to do.

The new site looks awesome!

August 25, 2009 by  
Filed under Community

Good work TLC!

I love the Facebook Connect!

Thirteen going on thirty…

October 19, 2009 by  
Filed under Community

A little over a month after being diagnosed.

A little over a month after being diagnosed.

Carrie and her little boyfriend Morgan July 2009

This wasn’t supposed to happen to me.

May 30, 2010 by  
Filed under Community

This whole cancer thing is really new to me. Its really scary, as you probably know.

I never got sick. And I mean that completely honestly. I skipped every flu season, and I never caught colds, viruses, anything. Ever.

It was the last thing on my mind. I was a senior. I was excited. I was the quarterback on the football team, leading forward on the soccer team. I ran track, I surfed, I snowboarded, I did everything. EVERYTHING.

Over the last 2 months, I’ve traded in my track shoes and my soccerball for IV’s and anti-puke pills.

I’ve traded in dates with my lovely girlfriend and hanging out with my buddies for doctors appointments and sick days.

I’ve traded in my life for a life I didn’t want anymore.

I wasn’t supposed to have to go through this.

My family wasn’t supposed to have to undergo this, and neither were my friends.

I wasn’t supposed to have to deal wth all of this, I was supposed to have a fun year. I was supposed to graduate.

I was supposed to be healthy.

I’m not anymore, and I’m so confused. My body has proclaimed war against me. My stomach refuses to hold anything down, my head won’t stop spinning, and my energy just dissapears as soon as I gain it, if I’m lucky enough to gain it.

I try to push myself. Because thats who I am. That’s what I’ve always done. I’ve always pushed myself physically, and mentally. I was all honors, and taking AP everything, and I’ve had to give that up, because I’m never able to go to school.

The other day, I tried to jog at least 2 miles after having a Chemo treatment. I stopped after one, because I was so weak, I felt so sick, and I didn’t have the want to do it anymore. All I want to do anymore is curl up in a ball and sleep.

It royally sucks.

But I’m not one to complain. I haven’t complained once to my mom, or my dad, or anyone else. They have enough to worry about.

So this is the first time I’ve complained throughout 3 rounds of chemo, and its side effects.

I don’t whine, I see that as a sign of weakness, and I don’t like being weak.

But I am.

So, I think I’ll curl up in a ball, and go to sleep for 12 hours now.

Thyroid Cancer

October 19, 2009 by  
Filed under Community

Hey, my name is Sarah and I am 17. I was diagnosed with papillary Thyroid cancer when i was 13. It is supposed to be one of the slowest growing forms and doesn’t usually move beyond the Thyroid. But mine had. It had move into my lymph nodes. I had a full thyroidectomy and some of my lymph nodes removed. Then had Iodine Radiation. I then relapsed when I was 16. I had another surgery to remove all of the lymph nodes on the right side of my neck along with the new tumor.  Besides this setback, my life has been going pretty well.  Don’t know what further treatment I will be doing yet, but I just take it a day at a time. If there’s anything I ca do to help anyone going through a similar situation, just get in touch with me!Hey

Thyroid Cancer

September 25, 2011 by  
Filed under Community, Coping with Cancer

Hey guys, I just now found this site, it looked cool so I decided to post. My name is Justin Anderson I am in college right now. Five years ago, the beginning of 8th grade I was diagnosed with Medullary Thyroid Cancer. I went through 2 surgeries in the first month in order to try to remove the whole thing. Then two years later I had to have surgery again because it moved to my lymph nodes, which I have to say was probably one of the more exhausting ones. I have to have my blood tested every 6 months because they know I still have it and its steadily rising, so I believe it might be spreading. I live with, but I try not telling people about except for close friends. I have been doing research a bit on my form of thyroid cancer and my thyroid doctor also told me that mine is apparently very rare at my age and so I was wondering if anyone else is diagnosed with the samething. Also I would be welling to help out anyone with questions to the best of my ability.


Thyroid Cancer

January 29, 2010 by  
Filed under Community

Hey, My name is Kourtney and I’m 16

On October 26 i went to the doctor to get a shot… all was normal.. until she checked my neck. My doctor found lump on my thyroid. From there i went to my ENT and we scheduled surgery for December 16. Final on January 6 of this year i got my test results back and it came back cancer. Then on January 21 i had a second surgery to get the rest of my thyroid taken out. So I had two surgeries in one month! Fun! Right! NO!!  And then today i got my stitches taken out! ( which im very happy about)

And now i have to see another doctor.

True Life: My Story.

October 22, 2009 by  
Filed under Community

My name is Terri and I am seventeen and was diagnosed with stageII ovarian cancer in November of 2008. It was like a nightmare I couldn’t really explain and living through something like this. My story is a little different then most but I want to share it in order to give hope to those who are going through the same hardships I am right now. It was school break, and I was enjoying the holiday with my family when I started to get strange stomachaches and pains and it got to a point where I found it hard to move. December came and the pain had grown and so had my belly. My friends had made a joke and would ask me when I was expecting and as funny as it was I knew deep inside something was not right. My mother took me to go to the ER (cause she thought it was appendices) , and I went and she felt my belly and told me I was severely constipated and I needed was some laxatives and I would be good to go. I felt a sense of relief when she told me because I had been getting a feeling it would turn into more than that. After I had taken my laxatives, I expected to feel better, but that wasn’t the case. Christmas came and went and I spent most of it on the couch in a pain I couldn’t explain as my stomach continued to grow. I asked my mother to take me to the emergency room once again. It was December when my mother too me to the emergency room the second time and I spent about 12 to 14 hours there with my mom.

When they told me I had to be transferred from Orange Medical Center to CHOC Hospital, something in my mind clicked and I knew I wasn’t okay. The doctors were not allowed to tell me anything because my mother didn’t wanna worry me if it was nothing. I spent the night and the next day, after a restless night,and CT/blood work had come back,I was told the reason I had been feeling so much pain and growth in the abdominal area was the result of stage II ovarian cancer and as the doctor said it herself, it was like she couldn’t believe she was saying it either. She had seen my CT scans and she sees ovarian cancer everyday so she didn’t think anything of it until she looked at my birthday and said the two couldn’t coincide because I was too young. I am one of the youngest patient known to have stage II ovarian cancer. After I found out, they had planned surgery for me. On January 2,2009, I went under the knife. They removed both my fallopian tubes. The recovery was painful and hard but I underwent it with the strength and support of my family,friends, and hospital staff. My first chemotherapy treatment began on January 13, and I was released from the hospital the next day. I had spent almost an entire month surrounded by disease and weakness and was finally able to get up and breathe in fresh air; but that didn’t last too long. I spent most of Feburary in and out of the hospital because of my blood cell count until finally in mid March I was stabilized and okay and home for good.

My mom[who is a nurse] draws my labs [takes blood out of my body] through my Broviac in the mornings when needed. My mom puts in the GCSF and I finish it sometimes. Mother does alot of the work [It sucks for her, she comes home from the hospital just so she can still treat me, so she is a nurse 24/7:/]. She have to learn how to give meds and learn how to read the special thermametors that are in Celcius form and She learn to translate them. She has to know alot so that you are safe when you are home. Its a bummer cuz when my counts are low they will be low for days or more and I have to be careful and when I go somewhere I have to be careful about things I touch and always be washing my hands and make sure I don’t get around alot of people because anyone could be sick.

Since January I have undergone 2 sessions of chemotherapy, and 4 radiations every three weeks. My CA125 is checked every two weeks. When I was first diagnosed with cancer my CA125 was over 900. With surgery alone it went down to around the 230′s. After two treatments, it was around 220′s and it didn’t budge, so my doctor decided to up my chemo meds to see if the numbers would change, and they did. My CA125 went from 230′s to THIRTY FOUR. I was thrilled, excited, and for the first time in four months I felt alive. The last visit to the doctor my CA125 had went down again, now to 22. Every time my CA goes down it ups my confidence to fight this terrible silent killer and the boost I need to carry on each day.

However, on June 17, I went in for an emergency surgery, cause I was bleeding 8x the amount then I was suppose to during my period. While I was under the knife, the surgeon, made a mistake and cut one of my arteries and I bled out on the table, and went into a set coma. After 3,000 cc of blood transfers,and 5 night in IUC I awoke, with a a stable condition. After being told what has happened, I saw this to be a calling, that I am meant to beat this. That I was not meant to go, this soon. That I am a fighter. I am on carboplatin and taxol, and since my body is responding so well she plans to keep me on it for three more rounds, and then to a CT scan and see if secondary surgery will be needed hopefully to finally to remove my ovaries, with out any complications. Even if it is, when I see my numbers going down so drastically, I think of how one day my life could possibly be normal, my life could possibly one day be cancer free. I will fight, and I will defeat this.

I was put on an oxygen tank thing a few times because I keep choking and coughing on fucking air/spit and not being able to breathe. I just recently started using this new medication called Atavand to help breath and be somewhat calm but most of the time I don’t get it in time. Cause when I call nurse A she doesn’t answer while I’m fucking choking and I don’t know what to do, cause well face it I’m in a room with a bitchy roommate all fucking day. They did fix the machine though Well I think:DD. Because also we found out that while I was calling they picked up we told them I needed help and it was urgent. They didn’t tell a nurse to come in. Stupid fucking nurses and stupid fucking machines. Its very frusterating. But I think they fixed the machine. But yeah I’ve been choking/coughing alot some days[Thanks to blood clot/side effects to medication], SOO I don’t know what else to do but deal, So they gave me this oxygin thing to help me get air. And my medication to stop the clot/coughing. [However it makes me blotted so I look like a blow fish.]

Even though, my numbers have gone up again, and I am going into treatment again, on October 10th, I still have hope, and I will update this as time comes.

Side Note: Yes I was diagnosed with cancer at age 16, and I just celebrated my 17th birthday. That day was one of the best days ever, cause I know I if I could make it to 17, after having doctors tell me I most likely wouldn’t make till then, gave me a whole new world of hope.

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