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August 15, 2013 by  
Filed under Community

This post send by

i have had a headache for the last two weeks if any one has any suggestions please let me no

March 13, 2011 by  
Filed under Community

The 2 cancers’ that I beat were rhabdomyosarcoma in my right jaw muscle and osteosarcoma above my left knee. I also received a blood transfusion after chemo with West Nile virus in it. I contracted West Nile Encephalitis and was a vegetable even unable to talk for 4 months. I had to relearn everything. So if anyone wants to talk about a bad hand dealt to them I am a great listener and I’m pretty sure I know how you are feeling.

March 12, 2011 by  
Filed under Community

we talked tus with transplant team and we r doing the transplant the day i get out of school and ill be in there for the hole summer and next year school year . its hard to go through this be my sister is going to be my caregiver,.

hi my name is jeremiah i am starting a chat line for any one on here it will be a chat line number it is not only for people that went throo cancer but it is for adalts to email if interested in being apart @ jeremiahg20@gmail hope too here from you soon

February 27, 2011 by  
Filed under Community, Coping with Cancer, Survivor Stories

Hey Guys! I’m new to this site so I thought I’d introduce myself.

My name is Rachel, and at 14 years old I was diagnosed with Stage 4 Hodgkin’s Lymphoma. Since then, I’ve gone into remission and then relapsed, so I had to have a stem cell transplant. I’m now 18 and in remission as far as I know, but I just had a CT scan and I’m really nervous about the results. I have this horrible feeling that my cancer’s come back again. I’m trying to be positive but I don’t think I can go through this for a third time.

I just wish I could feel like a normal kid again.

November 6, 2010 by  
Filed under Community, Friends and Family

I THROW MY ZOFRAN IN THE AIR SOMETIMES SAYING AAYYOO… WHERE’D THE BOX GO? This should be made a like on facebook, if you ask me. To confuse people.

If anybody on here is British, add me? If everyone here isn’t British, tell me to go drink tea and play croquet or whatever you think we do.  And if you want someone to talk to (like there aren’t enough lovely people already) then add me.

LOTS AND LOTS AND LOTS OF LUVVIN <3 <3

July 27, 2010 by  
Filed under Community

i hate having leukemia, i can’t do anything anymore. i can’t play baseball and i can’t play soccer. i can’t do what i used to do before all this happened, and worst of all i hate seeing my girlfriend suffer with me. she’s always trying to help me think positive ,but it’s very difficult to do when your in so much pain. Damn, i hate the fact that this is not only affecting me. but it is affecting her as well. why does this happen. !!!!!

April 14, 2010 by  
Filed under Community


I got my test results. They found two cysts in my groin. going to the ogyn (yuck) sometime next week. Hopefullly the pain will go away. I just want it to be next week.

January 10, 2010 by  
Filed under Community

Hi:) mi name is shantae’ im 17 about to be 18 feb 6 i am a cancer survior(Hodgkins Lymphoma i will been in remission for going on 3 yrs YAY

October 27, 2009 by  
Filed under Community

Hey everyone! Good luck at the hospital for those of you who are in treatment! I can’t wait for TLC tonight :)

Melissa’s Million – Daily Results

April 30, 2010 by  
Filed under Community, What's Happening


Men Women
Friday, May 21 Sang Vongprachanh – 1.5 inches

Ed Crosby – 6.75 inches

Jeff Towner – 12.25 inches

Sue Rozell – 19.25 inches

Barbara Williams – 26 inches

Cheryl Ferguson – 30.25 inches

Thursday, May 20 Glenn Ferguson – .75 inches

Jeff Towner – 6.5 inches

Jay Kirk – 8 inches

Barbara Williams – 12 inches

Mia Palumbo – 15 inches

Sue Rozell – 26 inches

Wednesday, May 19 Jeff Kachala – 16.75 inches

Sang Vongprachanh – 17.75 inches

Joe McHugh – 23.25 inches

Cathy Clark – 23.5 inches

Jody Schmidt – 26.5 inches

Betty Judy – 29.25 inches

Tuesday, May 18 Charlie Cote – 14.75 inches

Jeff Kachala – 24.5 inches

Jeff Towner – 33 inches

Barbara Williams – 22.5 inches

Christina Vongprachanh – 25.5 inches

Mary Ann Prezzano – 137.5 inches

Monday, May 17 Rick Cammilleri, 0 inches

Tim McMaster, 11.5 inches

Rick Clark, 18.75 inches

Liz Jaenike, 40.5 inches

Barb Williams, 45.25 inches

Terri Malone, 72.5 inches

Sunday, May 16 John Harrington, 10.25 inches

Brian Haefner, 14 inches

Lou Germain, 18.75 inches

Lynn Smith, 13.25 inches

Barb Williams, 31.5 inches

Liz Jaenike, 41 inches

Saturday, May 15 Jamie DeMino, 11.25 inches

Jeff Kachala, 17.5 inches

Doug Spike, 21.75 inches

Jody Schmidt, 8.25 inches

Liz Jaenike, 17 inches

Barb Williams, 24.75 inches

Friday, May 14 Jeff Towner, 13.5 inches

Rick Clark, 15.75 inches

Dave Bonsignore, 16 inches

Holly Wing, 32.75 inches

Nanette Davis, 42 inches

Lisa Nichols 25 ft.

Men
Women
Friday, May 14
Jeff Towner, 13.5 inches
Rick Clark, 15.75 inches
Dave Bonsignore, 16 inches
Holly Wing, 32.75 inches
Nanette Davis, 42 inches
Lisa Nichols 25 ft.
Saturday, May 15
Jamie DeMino, 11.25 inches
Jeff Kachala, 17.5 inches
Doug Spike, 21.75 inches
Jody Schmidt, 8.25 inches
Liz Jaenike, 17 inches
Barb Williams, 24.75 inches
Sunday, May 16
John Harrington, 10.25 inches
Brian Haefner, 14 inches
Lou Germain, 18.75 inches
Lynn Smith, 13.25 inches
Barb Williams, 31.5 inches
Liz Jaenike, 41 inches
Monday, May 17
Rick Cammilleri, 0 inches
Tim McMaster, 11.5 inches
Rick Clark, 18.75 inches
Liz Jaenike, 40.5 inches
Barb Williams, 45.25 inches
Terri Malone, 72.5 inches

MERRY CHRISTMAS TO ALL!

December 17, 2010 by  
Filed under Community

On behalf of the Nuptial Network of Greater Rochester, I would like to wish all of you a VERY MERRY CHRISTMAS and hope that the NEW YEAR brings you GREAT HEALTH and LOTS OF LOVE AND LAUGHTER!!!

We are all looking forward to seeing all of you at the event again this year in February!!

XOXO

Angela and all of the members of the Nuptial Network!!

My 16 yr old son just finished Chemo for Osteosarcoma

May 17, 2010 by  
Filed under Community

I am here for family members or teens with osteosarcoma….I can tell you our experience because it is very recent and still happening. God Bless.

My hair

October 12, 2009 by  
Filed under Community

This is my hair before.
 

 

My hair - with cancerthis is my hair before and after.

This is my hair before.

This is my hair before.

My Pride Out the Window

August 8, 2011 by  
Filed under Community, Coping with Cancer

Okay…. so I’m new at this… all of this.  This is kind of long, I realize, so sorry to whoever takes the time to read it. This is my first time using any kind of thing like this, and it’s also my first time admitting these weaknesses, so bear with me.

I’m Adrian, I’m 17, and I was diagnosed with AML about 2 months ago. My parents are divorced, and my dad is really rich. He supports me and my mom financially, but he’s not really in either of our lives anymore. This seems irrelevant but it helps the rest make sense.

So here’s the story. When I was 16 (before I got cancer) I moved out of my mom’s house, and into my own apartment, paid in full by my dad. I homeschooled myself, I did everything for myself. I used my free time to do whatever I wanted… and I admit that I did some bad things… but I was living the good life.

I live in a town where everyone knows me. Even when I didn’t go to public high school, everyone knew me and hung out with me.  I was popular. I was the one with all the money, the one who showed up to and threw the best parties. And the girls weren’t exactly shy around me either.

And then cancer hit me.

It started with getting really tired, then nose bleeds and a fever. My mom took me to a doctor, and after various tests, blood counts, and a bone marrow aspiration… etc. I was told I had AML.

The news pretty much destroyed my mom. It didn’t bother me as much as it should have. I figured I’d just adapt.

And the strange thing is… the one thing that did bother me, was that I had to move back in with my mom basically because I wasn’t able to take care of myself anymore.

About three weeks after my diagnosis was my 17th birthday. It passed without event, since I was too tired and too sick from my first few chemo treatments to really do anything.

I went from being the most popular person my age, to being helpless, sick, and not to mention, bald. I went from being independent to needing my mom to take care of me when I’m sick. Throw all my pride out the window. No one saw me as popular or cool anymore. They saw me as the guy with cancer.

My whole life I’ve been the kind of guy who isn’t bothered by anything. I’ve always been tough, and I never showed any weakness. I’m always impassive.  I feel like now that I have cancer, I am weak. And I hate it.

I admit that there are people who have been great at making me feel better. I have a caring mother and my amazing girlfriend, Sara, and they’re so supportive.  But niether of them quite… get it. They tell me all the time how I shouldn’t feel bad for needing help, but I can’t shake the feeling still. At the moment, I just feel like I’m about five years old. I hate it.

Anyway… sorry for practically writing a novel. I’m not necessarily looking for advice or anything. But I feel like I need to know that I’m not crazy for feeling this way. Do I have any right to even have any pride anymore, now that I’m sick?

My story

October 12, 2009 by  
Filed under Community

Hello,

well basically, after me and my family got back from a holiday in France in the holidays i found a lump on my neck… and long story short, a long stay in hospital and plenty of needles and scans later; I’ve got Hodgkins Lymphoma.

My sister had non-hodgkins a few years ago, so it was always in the back of my mind. When they told me it didn’t really sink in. I didn’t know how to react. It was all just so… surreal.

I’m having chemo now, and I’m on my third cycle. After the first two we went to see my consultant at the Marsden and now instead of seven days out of every month at the hospital its only two! Also he said the cancer is now 99% gone!

So, you can imagine how happy i was :)

At the mo i’m doing OK. Some of my fingers are a bit numb and my toes feel really weird.

Oh yeah i forgot! A few weeks after they told me the diagnosis and that i would need chemo, i knew my hair would fall out so i decided to shave it all off for charity. I did a fundraising evening also and i raised over £3000 for the Royal Marsden Cancer Campaign which is building the biggest teenage cancer unit for children in Europe (:

so… that’s me

x

p.s. sorry it was such an essay!

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