This post send by Savannah
Okay, so they switched my chemo to a regimen called folfox. Which is commonly used for colon cancer but in this case is being used for my liver cancer. Since I began this drug it has been soooo much worse than the other stuff I was on. I am having side effects which include the normal (fatigue, nausea, decreased appitite etc.) But now I also have new side effects which include painful tingling in my hands and feet when anything cold touches them, stinging in my throat when drinking anything cold, and more hair loss. These symptoms are normal for my chemo from what I am told. But my problem is that I am having certain side effects that my doctors are not able to explain. This includes increased urination sometimes and other times urinating without knowing it, extreme burning in my throat and chest whenever I eat anything (cold or hot) And sometimes when the burning occurs I feel as if I cant breath. Which is extremely terrifying. I would just like to know if anyone has had these symptoms on folfox or on any other chemo, and what I should do about it. Because my health is slowly getting worse when chemo is suppose to be curing my cancer. I know that chemo takes a huge toll on ur body but still… Also my doctors believe I may be contracting diabetes on this chemo, has this happened to anyone also? Any info or advice is greatly appreciated I am just starting to get scared and I am sorry to those of you who feel this is TMI but I just need to know if anyone else has experienced this. Thanks
This post send by Ivylin Cordova
Hi everyone my name is ivylin Cordova I\\\’m a cancer survivor and I have PTSD from it I was 13 when I had Rhabdomyosarcoma I was really scared when I found out I didn\\\’t know what to do I had really bad depression none of the people I went to middle school with know I had cancer only one knew my best friend I told her the day I found out she started to cry hard I cried hard to I couldn\\\’t breath for a moment I told her ill be ok ill be fine she said ok she asked me if anyone else knew I said only my family and you that\\\’s it and I was so angry,sad I didn\\\’t want to believe it had it a month after I turned 13 I wanted to cry I had it in my uterus I couldn\\\’t stop bleeding for 6 months I knew something was wrong so did my mom she told the doctors what was wrong with me they said it was regular teenage stuff I didn\\\’t believe it but I\\\’m 2 years cancer free I\\\’m 15 now I\\\’m great I have a beautiful girlfriend and I\\\’m proud to be bisexual ☺ CANCER SUCKS!!!!
This post send by Rachael
In the span of about a month and a half I lost most of my hair. As I watched it fall out I put off shaving my head because I did not want to have no hair. Big mistake. If I could do it over again I would just shave it all off before the hair loss started. By the end I was starting to question my sanity as I cried myself to sleep every night, and cried every morning as I saw my pillow covered with hair. The bottom line? I can get used to having no hair but nothing could be more gross then rolling over and getting a mouth full of hair.
I was diagnosed with AML back in december 11 2010. And i have lost all my hair(which is my pride) i was very strong bout it but now im startin to wear down because ppl are confusing me for a guy and im really upset bout it. my friends dont get it and idk what to do. someone please contact me. btw im 17
i have had a headache for the last two weeks if any one has any suggestions please let me no
I am no longer technically a teen… I just turned 20 in January.. but who’s counting really
I was diagnosed with a rare form of the Ewing’s Sarcoma family of tumors called PNET in February of this year.
I start my first round of an intense chemo cycle tomorrow.
Through out this whole thing I haven’t been scared of cancer, or death.. just the side effects and the things that I can’t predict.
I will loose my hair, probably blow up like a water balloon.. and apparently my nausea meds will make me super hungry so I could gain wait. I have never been one too worried about what people think of me and how I look. But now that my appearance is out of my control and I will have cancer patient written all over me.. I am so devastated.
How do you all handle the appearance changes?
hi my name is jeremiah i am starting a chat line for any one on here it will be a chat line number it is not only for people that went throo cancer but it is for adalts to email if interested in being apart @ jeremiahg20@gmail hope too here from you soon
hey everyone. im new to this site. so i dont really know how it works. im 20 yrs old && i was diagnosed with a rare cervical cancer at 17 yrs old. i had to have a histerectomy && no longer have the abililty to bear children. i have had 3 re-occurences since then. im going through thte 3rd now. ive never been able to talk about how i feel with family or friends because they dont feel the same pain && hurt as i do. i was just wondering if there was anyone else on here who may have a cervical cancer or one similiar to mine. although being 20 yrs old im suppost to be strong && not worry but that really isnt true i just found out recently that im going to loose my hair && even though my wig is beautiful im still really upset about it. i know people have it much worse than me && i shouldnt be upset but ive never felt so alone && so unlike me in my whole life even when i had like 2 friends in school. i appreciate you reading what i have to say & & i really hope i can find someone or someones to talk to maybe my life wont feel so alone or worthless..thank you
20 yrs old
Everything changes during a moment
Someone’s life begins while another ends
A smile turns into a frown
A room full of people turns into nothing
Everything you ever wanted to do,
Nothing else matters
Nothing else is important
You no longer belong to yourself
Everything you use to love,
no longer holds interest for you
Peace is no longer found in faces or places
War is lurking around th corner
The only thing that matters
The only thing that is important
so yeah i took a class at the hospital called cancer is your friend.. and i didnt understand it at first but after a couple of classes i realized that you shouldnt hate cancer all the time for what its doing to you you should be happy that its made you such a wonderful person. i am now very stronge and confident and i help people and alot more now i mean you dont need cancer to learn that but there are some good things that come from this disease