i took a class at the hospital called: cancer is your friend

so yeah i took a class at the hospital called cancer is your friend.. and i didnt understand it at first but after a couple of classes i realized that you shouldnt hate cancer all the time for what its doing to you you should be happy that its made you such a wonderful person. i am now very stronge and confident and i help people and alot more now i mean you dont need cancer to learn that but there are some good things that come from this disease

Osteosarcoma.. love the fighters,survivors and the taken

well ive been in the hospital know for about a month:( ive switched to a new one:) and im doing radiaion and chemo so hopefully ill achieve remisson and wont relapse again. relapsing is hard espically 3 times and when u go into cardiac arrest and when the doc tells u ur gonna die. but so far ive proved all of them wrong and ima keep doing that:) ive had to deal with so much and ive had so many friend with cancer that i practically know everything about every form lol just kiding:) if anyone ever needs to talk you can email me @ spidygoalie@yahoo.com im a good listener and talker:) <3 (think about the fighters survivors and the taken)

Siblings group project

Kelsey Harper, a doctoral student at the California School of Professional Psychology, is designing a support group to empower, strengthen, and support siblings of children and teens with cancer.  Enhancing resilience in siblings of children with cancer will provide them with the strength and tools necessary to effectively cope with the variable, ambiguous, and unpredictable process.

 This project needs adults 18 years or older, who are a member of a family currently experiencing recent diagnosis, treatment, or recent remission within the last two years.  You can offer your ideas with this important group of children, and your family offers your help in building a play group special for children like yours, helping give much needed rest, fun, and growth to siblings of children with cancer.

 If you can participate, please follow this link to the online Powerpoint presentation outlining the project and the curriculum (http://www.slideshare.net/harperk2/enhancing-resilience-in-siblings-of-children-with-cancer?from=share_email).  After viewing the presentation, please follow this link to an online survey to answer questions about you and your family, your feedback on the curriculum, and additional comments about the needs of families like yours (http://alliant.qualtrics.com/SE?SID=SV_8vQgHCC5h6Ut2K0).    Please have only one person per family complete the survey on behalf of the family.  Thank you for your help with this important project.

 

Presentation:  http://www.slideshare.net/harperk2/enhancing-resilience-in-siblings-of-children-with-cancer?from=share_email

Survey:  http://alliant.qualtrics.com/SE?SID=SV_8vQgHCC5h6Ut2K0

 

 

Please contact Kelsey Harper at kharper@alliant.edu for questions or more information.

July 9, 2010 by  
Filed under Side Effects

I was diagnosed with ALL on September 29,2009.  Since then, I’ve finished my freshmen year of high school at home and finished 3 phases of chemotherapy treatment.  Now I’m in maitenance and it’s supposed to be the easiest phase, but its been pretty difficult so far.  Instead of spending 4th of July in Disneyworld like I was supposed to, I was stuck in the hospital with a fever and super low blood counts.  I’ve been off most of my chemo for about a month now because I had a rash, but my blood counts are still taking forever to improve.  It’s really frustrating because it’s preventing me from going on my vacations and going out with my friends.  It’s hard to explain this to any of my friends because they don’t truely understand.  They just keep telling me to stay strong, but in order to stay strong you had to be strong in the first place and I don’t feel very strong.  To top it all off, all of the changes that my body has been going through has made me extremely self conscious.  I didn’t lose all of my hair, but it is significantly thinner, I’ve gained about 15-20 pounds, and I have tons of stretchmarks, oh yeah and my face has become the roundest thing I’ve ever seen.  I handled everything really well for the past 10 months, but now I’m really starting to lose it. Thanks for letting me vent.

Wowz.

June 27, 2010 by  
Filed under Coping with Cancer, Side Effects

Eh..so yeah..I don’t really know what to say…it just pretty much sucks having to wear a wig and everything..it’s itchy, uncomfortable, and totally not what I planned to put out for myself this year. Throwing up all the time is not just uncomfortable..it’s downright annoying. And having people not know what your going through is the worst part. It’s  a secret, and it’s gonna stay a secret.

You guys rock.

Chemo, love hate relationship.

June 14, 2010 by  
Filed under Coping with Cancer, Side Effects

I hate chemo. I hate it so much, the nausea, the jelly knees, the fatigue, the vomitting, the hair in the bottom of the shower and all over my pillow and in my hands. There are so many terrible side effects, the cure can be worse than the disease.

However, its the cure, and it will make me better. Its the only thing that will get rid of the cancer, and its helping me.

Its very weird to hate the thing saving your life this much.

So…sick… I hate chemo treatments.

My name is Caleb. I’m 17, and I have Leukemia. I was diagnosed almost a month ago now, and I’m starting my Chemotherapy. Yesterday afternoon, I started my second round.

Thank God the first round was easy on me. This second round is really kicking my butt.

I didn’t feel really well yesterday morning, anyways. And I had the option of either having the treatment this morning, or yesterday afternoon at 4, and I opted for yesterday afternoon, because I had a track meet this morning.

I got there around 4:00, and they hooked me up. I sat in the seat, and waited for it to finish dripping.

Halfway through, I got a HUGE headache. I mean, this was the worst pain I’ve ever had in my head. It felt like someone was hitting me in the head with a hammer.

I finished and went home about 2 hours later, after talking to some really close friends in the treatment place.

I got home, and went to lie down and watch a movie. My head was still pounding.

This morning, I woke up, and automatically felt sick. I stood up, and I was extremely dizzy. I spent the better part of the morning in and out of the restroom, and sleeping on the bathroom floor. I hate that.

I was usually pretty healthy. I never got sick before all of this happened, and I’m not used to it. I don’t like it.

After my numerous restroom trips, I finally worked up enough strength to make it down stairs to say good morning to my amazing mother, and I sat down at the kitchen table, and laid my head down. My mom felt my forehead, and took my temp and all that. Granted- she’s not used to this quite yet, either. She’s used to healthy kids, I mean, none of my 5 brothers have ever had anything that compares to this, and neither has my sister. Quite frankly, neither have I. She’s not very fond of us being sick at all, I mean, the flu season is a terrible time for her! I was running a fever of like… 102, I think. And my head was still killing me.

She sent me to lie on the living room couch, and when I laid down, I turned on Fired Up!, and soon fell asleep.

I woke up about an hour later, and I felt a HUGE surge of nausea, and I leapt for the restroom.

See, now, this is where my story gets pretty pitiful. I hate being sick. SO much. I absolutely despise it. But I’m smart enough to expect it with Chemo.

So, I spent a lot of my afternoon throwing up, and falling asleep, and throwing up, and falling asleep again, and on and on.

Needless to say, I didn’t have a very good day.

I hate Chemo treatments.

Who’s with me?

osteosarcoma Please leave advice

May 1, 2010 by  
Filed under Coping with Cancer, Side Effects

Read more

BOOK WRITTING HELP!

Hi everyone!

My name is Valeria, I actually dont have any cancer, but I am writting a book about it, I really would appreciate if you could tell me your stories so I could take some ideas,

Thank you everybody!

.

Hey

Hey everybody…

I’m not a teen, but I coordinate activities here in Rochester NY for teen cancer survivors…and I’m a two time cancer survivor myself.

It’s not easy to deal with all the regular stuff in life…then add cancer and it’s like somebody just dumped a watermelon on your already overloaded paper plate. How’s that analogy? 

Anyway, I want everybody here to know that you are not alone…and that simply by connecting with others here you can find ways to deal with all this cancer stuff. Keep hanging in there…you have a lot to share.

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