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so far so good

May 31, 2013 by  
Filed under Community

This post send by Ethan Mobley

well I\\\’m finished with therapy for the 16 days. Having a hard time when I want to leave the wrap off from my surgery to remove my bone cancer in the leg. I keep thinking people will be disturbed about it or not talk to me… so what do yall think,should I just try it for one day and see what happens?

What a journey

May 29, 2013 by  
Filed under Survivor Stories

This post send by brittany

September 11th, 2012 was probably the scariest day of m my entire life. It was the day i was diagnosed with synovial sarcoma, a rare type of bone cancer found in kids. Although it hasnt been that long, i feel like i\’ve been dealing with it forever. I had to undergo chemo, radiation AND surgery. Chemo for me wasnt even the worst part. The surgery was. I finally finished chemo and had my surgery January 3rd of 2013.They had to take a huge piece of my femur(thigh) bone out and i now have metal and a 10 inch scar.I\’m doing a lot better with getting around. No more wheel chair.Just crutches. I shopuld be getting my port out soon. And when i thought i was done, i fell yesterday on my leg and i am back in the hospital because of pain management. Its a never ending rollercoaster and i wanna get off.

Living with cancer.

May 22, 2013 by  
Filed under Uncategorized

This post send by Kendra

Hey my name is kendra and I\\\’m 15 years old I was diagnosed 2 years ago with ALL. When I got diagnosed I was at the end of 7th grade and at a small school with only 10 kids in my class. But not I am a freshman almost sophomore in high schools s I moved to a pubic school where there is more people. Only a few people know what is going on in my life. Lately I\\\’ve been missing a lot of school and when I come back to school after be gone for a while I get all kinds of question like where have you been? Skipping school? Or why do you miss so much school? I also get the question dont you get in trouble for missing school and all I answer is I have a doctor excuse. I am ready to be done with treatment and get back to life like a normal kid. I know I will get through this and one day my story will help someone else. If that person is you and you have question email me I would love to make new friends. Kberschet@yahoo.com ☺ stay strong everyone!

Update

May 15, 2013 by  
Filed under Uncategorized

This post send by Savannah

Hey guys it\\\’s Savannah again, just thought I would give all of you the new news. I had scans done last week to check to the chemo and what not. My small tumors that are all over my liver are smaller and the large tumor is showing signs of dying off, also I had a lymph node that was full of cancer and it is now clear. I am at the stage now where I can have a transpant if needed, but my doctor would like to try to salvage my own liver so they are going to do a couple more blocks of chemo and try to get rid of the small tumors. I am super happy about the scan results and hoping for more good news after the next couple of blocks.

Thanks for listening and God Bless ☺

Ready to fly….

May 11, 2013 by  
Filed under Coping with Cancer

Hi! I am Ruby. I was supposed to come to this website four years ago when I was first diagnosed. But at that time, I was overwhelmed with my diagnosis and didn’t want to talk to anyone or see anything related to cancer. Today, I found this card that my social worker gave me back in 2009 and decided to share my story.

I was diagnosed with a stage 3 rhabdomyosarcoma a few days before my 15th birthday. At that time, I didn’t really understand what was going on, I just knew that I had to get treatment for 10 months and I couldn’t go to school during that period. It turned out it was so much more than I expected: 3 cycles of chemo and 28 rounds of radiation, losing hair, having virtually no friends to talk to ( They just didn’t understand). Luckily, I have two very caring parents and family members, I kept fighting. Eventually when the chemo ended after 1 year, instead of 10 months ( bc I was too weak to have any more chemo some time so they had to delay the chemo), I was actually reluctant of going to school, because I didn’t have any hair. (And my school is very straight about not having hat/cap on once we enter the school building) After all the worrying about going to school with hair disappeared after I learned that I had to wait until the Spring semester to return to school anyway. So I continued with Home Schooling in the meantime. Because I no longer had a suppressed immune system, I was allowed to have anything I want ( I love eating!). So I ate lots of SUSHI (my favorite), fried things, steak! (second favorite) in that period and thinking that it’s all over.

So I started going back to school as a junior in Spring, with short hair (guy’s hair). My old friends were supportive in school. They waited for me after class, walked with me to the train station, told me jokes that I still remember today. Life was starting to get better. One month later, I was told that I had a relapse. At that time, I was really upset; “I had done what I was told to do, I did nothing wrong, I didn’t kill anyone or even punch anyone?! Why do I have to suffer?” I was really fearful at that time because anyone who has gone though chemo knows how painful that is. Desperate for a new normal life, and, sort of, because of my superstition, I switched to another hospital. I knew I made a right decision when I met my doctor there. He gave me many treatment plans and explained to me carefully. This time, the chemo was less severe and my hair didn’t fall off. ( I was really grateful for that) So I continued this less painful treatment along with 20 or so radiation while I returned to Home Schooling. All the scans showed good progress and it was time for High School graduation. My doctor and I were discussing check-ups in a hospital near my College because it was time for the chemo to finish up. I was really excited for college, the classmates I met in the student meeting were friendly, the college offered classes I love taking. At the same time, I was also preparing for my road test and I was leaving for my trip that Make-A-Wish has arranged for me. That summer was full of excitement and hope. Then, one day ( about two weeks before my departure, I found a bump on my shoulder bone, and it turned out to be another relapse. My doctor quickly ordered another round of radiation and, luckily, it was just that one tumor. So I left for my trip after the radiation, still happy and excited.

As I was traveling, however, I noticed there’s a little bump on my neck, so I contacted my doctor, and he said it’s better for me to continue enjoying my trip than returning immediately ( I know he made a good decision for me because that trip was amazing!)So by the time, I returned that bump grew into the size of a mango. I hope a radiation could take of it, like last time. But I wasn’t lucky this time, cancer cells have spread to other parts of the body, neck, lymph nodes, rib …etc. ( I don’t really know the detail, I just know it’s pretty bad) So I immediately went through intense chemotherapy and postponed college.

Now, I am still continuing chemo and hoping that it’d end soon because if I can’t go to school this fall, I’d have to reapply to college. One thing that’s different is that I no longer blame anyone or anything for this — I know if I want to get better, I have to work for it: eat less meat and exercise more. I used to be and still sometimes am a passive and pessimistic person. If you are like me, Here’s a trick for you: Just don’t think about the bad things at all, that way you will never get depressed. Whenever a gloomy thing comes across your mind, Just think about the good things. Believe you can win and you will win. Believe there’s a future ahead of you. Believe someday you will be freed and able to fly away from these nightmares. Meanwhile, prepare yourselves to fly! Try to be optimistic!

If you’d like to talk, feel free to email me at rubymeow24@gmail.com

Good luck to all of you! Keep fighting!

Same old view

April 25, 2013 by  
Filed under Uncategorized

I had the choice to choose treatment or to let the cancer run it’s course, I chose life. Now I feel like I am wasting my life in a hospital because I chose treatment. I have missed so many things because of the cancer and I feel like I am going to miss a lot more. Has anyone else ever felt this way? What am I suppose to do?

-Savannah

ewings sarcoma

April 21, 2013 by  
Filed under Coping with Cancer

Hi I’m allie and i am 15 , i have ewings sarcoma.I had chronic leg pain for about a 6 months and figured it would go away.I was terrified when i found i had cancer, i was too young to die.

When i was first diagnosed i didnt want to bother anyone for anything. I am a very independent person. My had a tumor in my leg which caused my thigh to break. I was put in a hip spica cast. So basically i couldnt really get up to the washroom or even dress myself. its the worst when you cant even get your own pants on yourself. i eventually learned to ask for help if i needed it.

My treatment plan included 6 rounds of chemotherapy, limb salvage surgery, 8 more rounds of chemo with 28 rounds of radiation. Ive gone threw 2 port a caths (first one broke) and have gotten a stomach tube since ive been diagnosed, and have had 8 surgeries.My chemotherapy used to make me so sick i was in the hospital for 9 weeks when i started and i could eat at all . Currently i have 2 more chemo rounds left. im still recovering from my leg salvage surgery and im on crutches. Ive recently gone back to school.

I still considered my self very blessed. I live in a loving small community. I have supportive friends and family. They actually did a few fundraisers at school and in the community. Ive received endless cards, and many gifts. I also am at one of the best hospital in Canada and i have an amazing oncology team. I have a school trip to Quebec City and ottawa to look forward too, as well as a summer camp for kids have or had cancer.

It gets better

Trying to stay positive

April 20, 2013 by  
Filed under Newly Diagnosed

Hi my name is Savannah, I am 17 years old, and on April 1st I was diagnosed with a rare type of cancer. I have stage 4 Cholangiocarcinoma located in my liver and one of my lymph nodes that surrounds it. The reason that the cancer is considered rare is because Cholangiocarcinoma is normally not found in young people or the liver. I have been trying so hard to be positive and have hope that the situation will get better, but it is becoming harder and harder to be optimistic. I want to honestly say that the severity of all the news really didn’t hit me until here recently and I feel like I am starting to break. I always have family around and my boyfriend has been so good to me since we got the news, he is at the hospital everyday to support me, but for some reason I still feel so alone. I also feel like I am such a burden on everyone since they always have to help me and take care of me now, they say that I shouldn’t think that way, but up until this month I was a very independant person. I had my own job, did my own schooling, and for the most part was begining to take care of myself in an adult manner, and now I am stuck laying in bed, with no job, and having people take care of me, it is driving me crazy and making me feel bad for taking up so much of peoples time. I just dont know what to do or what the next step should be, I am so confused, upset and sometimes I just get mad for no reason. I am always feeling guilty for taking my anger out on my loved ones and I know they hate me for it but it feels like I can’t help it, since I started chemo I have been so moody it’s unreal. Well if you took the time to read all of this, thank you, I just needed to get it out and maybe get some advice while I am venting. Thanks again and god bless :)

I have Leukemia, Leukemia dosen’t have me!!!!!!!!!!

April 11, 2013 by  
Filed under Coping with Cancer

I was diagnosed w Leukemia just recently.
I am 10 wks from 18.
I am unsure of what my future w Leukemia may hold.
But I am fearless bc I believe God is on my side.
Even if I lose my hair, I won’t lose myself.
Bc I have Leukemia, Leukemia dose not have me.
I like to make new friends who understand cancer.
E-mail me if you wanna be friends.
geminiprincess614@yahoo.com

Sandi

Cancer sucks

March 28, 2013 by  
Filed under Newly Diagnosed

Hi! I’m 12 so not exactly a teen, but my doctors are 99% sure I have ALL leukemia. I really don’t want to have cancer, but I have all the symptoms, and the bone marrow biopsy showed cancer cells. I start chemo on Monday. I most likely have ALL, but they aren’t quite sure yet. Any advice?

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