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Update (Sorry it’s been so long!)

January 13, 2013 by  
Filed under Coping with Cancer

So I had this all typed out, hit the wrong button on my computer and erased it all. Obviously I’m not computer skilled.
So it’s been a while since I wrote here. i think the last time was right before the scan I was going to have that would confirm that I had cancer.
In September I was diagnosed with cancer, a tumor on my liver with mets (I think) on my brain (And don’t ask me the name of the cancer because I am totally drawing a blank right now… yay, brain tumor!)
My cancer is slow moving abd we’re waiting for cancer to make the next move. I’m not doing any chemo or radiation, instead opting for alternative treatments to try to get my cancer into stability.
I go back to get more scans and blood work and meet with a bunch of doctors at the beginning of February and that, hopefully, will give us a better idea of what we’re dealing with.
Things have been getting a lot better in this past week both emotionally and physically (yay!) so i’m really hoping it will be good news I get in February (Or all these natural diets and cleanse’s and detox’s and meditation and yoga and reiki and juicing would be for nothing)
And other then that… I turned 16 since my diagnosis, which is crazy. I don’t feel old enough to be graduating next year. But I am! I’m still single (Sigh…) and I think the cancer thing really freaks out most people. I’m attending school part time, working casually and am turning into a full time healing junkie.
Sending love and hugs to all of you

id love to be a model for teens living with cancer

January 12, 2013 by  
Filed under Coping with Cancer

hi my name is maria bustamante but i go by mia
i have stage 3 type B Hodgkin lymphoma and everyone i meet tells me how strikingly beautiful i am with and without my hair. im completely bald now and i still have all my confidence if not more; multiple employees at Randall children s hospital in Portland Oregon said i could be a model for cancer. im very very interest and want to be a model but im 17 and 5’1, but please stay in touch and help me find out more info about modeling i want to make a difference in other teens and kids lives by showing them that life is so far from over because of cancer. i have cancer, cancer does not have me:)
sincerely maria

Rachels’ Story

January 10, 2013 by  
Filed under Friends and Family

My name is Rheanan, and my best friend Rachel was just diagnosed with stage two leukemia. She won’t give me many details, but my friends and I are all her best friends, and we just found out tonight. We aren’t handling it well at all. How do you cope? How do you deal with something you never dreamed would happen to your best friend?

Bladder Cancer

January 3, 2013 by  
Filed under Survivor Stories

Hi, I’ve only just found this site as I thought it might be helpful to share stories with people who have gone through a similar situation to me.
2 years ago when I was 17, I went to the doctors with an unusual numb feeling in my right hip, he sent me for ultrasounds, CT scans, MRI scans and eventually for a flexible cystoscopy (incase anyone doesn’t know that’s basically when they put a camera up into your bladder). As soon as the cystoscopy was over I was asked to wait in the surgeons office while he went to get my parents, we all sat in the office while he told us I had a bladder tumor that could be cancerous, as soon as I heard the word ‘tumor’ I just completely zoned out.
I was put on an emergency list and I had an operation just 2 weeks later to remove the tumor, they done some tests and found out it was cancerous, so they injected a dose of chemo into my bladder.
Luckily that one dose was all I needed and I now have an operation every 6 months to check the tumor hasn’t came back, which it hasn’t done yet!
I am definitely very lucky and sometimes I don’t think I deserve the sympathy people give me, all I think is I didn’t know it was cancer until after it was gone and I only needed one dose of chemo, which didn’t give me any side effects at all since it was injected straight into my bladder.
The only thing is sometimes I feel like I don’t have anyone to talk to about it, no-one I know has gone through anything like this and according to my doctor, Im about 60 years too young to have bladder cancer, no-ones knows why I got it so young and now everytime I have my 6 monthly operation or I have the slightest pain in my bladder im terrified the tumors back. I guess that’s just something ill have to get used to.

Thanks for letting me rant, haha

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January 2, 2013 by  
Filed under Uncategorized

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telephone San Diego

December 25, 2012 by  
Filed under Uncategorized

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Synovial Sarcoma?

December 17, 2012 by  
Filed under Uncategorized

Hi, my name is Dominique and I am 17, almost 18. I was diagnosed with synovial sarcoma when I was 13. I have only met one other person with synovial sarcoma and he’s a 10 year old boy. Is there anyone else out there?

Scared to death

December 17, 2012 by  
Filed under Community

I’m really sorry but I’m going to first off say I don’t have cancer. Doctors have found nodules n my thyroid and I will shortly have a biopsy. But I scared, I’m scared its cancer, scared I might not even make it. I’m 18 and have so much ahead of me and just to have these thoughts in my head kills me. I guess I came here just looking for reassurance or guidance, and to say that I applaud everyone who is dealing with cancer, you are all heros in my eyes.



December 11, 2012 by  
Filed under Survivor Stories

Let me just say that this website is great. I don’t feel so alone now knowing other people have gone through what I’ve been through. I feel like I should share my story, because it may help someone.

I was a normal 10 year old. I was enjoying my 6th grade year and living my life to the fullest. I enjoyed many trips to Disney and was taking dance classes. Life was good. Until, April of 2010. I was diagnosed with embroynal rhabdomyosarcoma. Phew! Never thought I could say it all.

At age 10. The tumor was in my sinuses and I had surgery to test it for malignancy at the children’s hospital of Philadelphia. Our fear came true when we learned it was cancer. It felt like my heart had sunk to the floor when I found out. As a young girl, when I learned I would have to have chemo I immediately thought of my hair. Would it be gone right away? How long until it all fell out? I wasn’t thinking of the seriousness of the situation, but I guess that’s where the innocence of a child comes through. My doctors at CHOP had me start treatment immediately so we could nip this cancer in the butt. I endured many pokes and pinches, blood transfusions, and 3 surgeries through the whole process. I had a feeding tube since I wouldn’t be able to eat for 10 months. Imagine that. I didn’t put one piece of food in my mouth for 10 months. I was fed through a tube in my stomach. My throat was so damaged from the radiation I would need. I had 10 months of chemo. It was a long journey, but I came out victorious. I beat my cancer and now I’m almost 2 years out if my last treatment.

I want to let those starting out to know that you will get through this. Yes, it’s devastating. Your going to feel so many emotions. But, think of your life. You will get through this and there will be a better life after cancer. I’m living it.

I Just Don’t Know What To Think

December 8, 2012 by  
Filed under Uncategorized

This past month, I have been dealing with servere issues. I have been dizzy with headaches and passing out, nausea, vomiting, blurred vision, confusion, losing feelings in my legs, just feeling like I am constantly car sick. I was sent for a CT scan and was told I have masses in my brain, and I am going for an MRI this upcoming week, and I can honestly say I’m petrified. Having a brain tumor is scary within itself, having a cancerous brain tumor is a totally different ball game. I am a high school senior with a bright future ahead of me, I can just see it. What will I do if it is cancerous? How will I be able to finish school with my graduating class? How will I get to college on time?

How will I? How will I? How will I?

I just don’t know what to think. I don’t know what to do. And I definitely don’t know where to go for support.

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