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Hi, my name is Dominique and I am 17, almost 18. I was diagnosed with synovial sarcoma when I was 13. I have only met one other person with synovial sarcoma and he’s a 10 year old boy. Is there anyone else out there?
I’m really sorry but I’m going to first off say I don’t have cancer. Doctors have found nodules n my thyroid and I will shortly have a biopsy. But I scared, I’m scared its cancer, scared I might not even make it. I’m 18 and have so much ahead of me and just to have these thoughts in my head kills me. I guess I came here just looking for reassurance or guidance, and to say that I applaud everyone who is dealing with cancer, you are all heros in my eyes.
Let me just say that this website is great. I don’t feel so alone now knowing other people have gone through what I’ve been through. I feel like I should share my story, because it may help someone.
I was a normal 10 year old. I was enjoying my 6th grade year and living my life to the fullest. I enjoyed many trips to Disney and was taking dance classes. Life was good. Until, April of 2010. I was diagnosed with embroynal rhabdomyosarcoma. Phew! Never thought I could say it all.
At age 10. The tumor was in my sinuses and I had surgery to test it for malignancy at the children’s hospital of Philadelphia. Our fear came true when we learned it was cancer. It felt like my heart had sunk to the floor when I found out. As a young girl, when I learned I would have to have chemo I immediately thought of my hair. Would it be gone right away? How long until it all fell out? I wasn’t thinking of the seriousness of the situation, but I guess that’s where the innocence of a child comes through. My doctors at CHOP had me start treatment immediately so we could nip this cancer in the butt. I endured many pokes and pinches, blood transfusions, and 3 surgeries through the whole process. I had a feeding tube since I wouldn’t be able to eat for 10 months. Imagine that. I didn’t put one piece of food in my mouth for 10 months. I was fed through a tube in my stomach. My throat was so damaged from the radiation I would need. I had 10 months of chemo. It was a long journey, but I came out victorious. I beat my cancer and now I’m almost 2 years out if my last treatment.
I want to let those starting out to know that you will get through this. Yes, it’s devastating. Your going to feel so many emotions. But, think of your life. You will get through this and there will be a better life after cancer. I’m living it.
This past month, I have been dealing with servere issues. I have been dizzy with headaches and passing out, nausea, vomiting, blurred vision, confusion, losing feelings in my legs, just feeling like I am constantly car sick. I was sent for a CT scan and was told I have masses in my brain, and I am going for an MRI this upcoming week, and I can honestly say I’m petrified. Having a brain tumor is scary within itself, having a cancerous brain tumor is a totally different ball game. I am a high school senior with a bright future ahead of me, I can just see it. What will I do if it is cancerous? How will I be able to finish school with my graduating class? How will I get to college on time?
How will I? How will I? How will I?
I just don’t know what to think. I don’t know what to do. And I definitely don’t know where to go for support.
Hey! My name is Amy (19) and about two weeks ago I was given the diagnosis of serous carcinoma behind my uterus. I just feel really alone because nobody knows how I feel. I felt really empty and numb for the first week, then on Saturday I was annoyed about something which triggered something within me and I became the HULK! Im taking my anger out on my friends and family, and my a really close friend of mines just isnt coping well with it. Just felt like I had to share how I felt.
I was also a councellor at a camp for children with Leukemia in Northern Ontario and I know from my own experience that it is sometimes easieer to speak to someone who has been through what your about to go through and knows ways to help other understand and I can also help parents as this can all be a whole new turn in your life…Hope to talk to you soon…
Derek Millington, 3000 Stautw RD. #104 Saanichton BC
V8M 2K5 or Dmillington121@hotmail.ca
Hope to chat with you soon! Derek
I was only 13 when I was told that I have Leukemia and in 1980 the odds were very low on survival and the whole world scared the ___ out of me but I managed to not give in and fought back, taking advantage of the Chemotherapy and radiation and just pushing myself to take the abuse i was recieving and over come it….Well thanks to some great Doc’s at Toronto’s Sick Childrens Hospital, My parents, Ronald Mc Donald House and some great friends I met along the journey, I had three children totally healthy and a great life.
After 32 years Im 100% healthy and you will be too….
if anyone has questons or would like to talk about life with Leukemia feel free to contact me at 250-883-7633 anytime night or day…I hope I can help…Derek
Hey everyone, I am Maddy (17), and I have this deep appreceation for teens going through cancer, so I want to know ways that I can personally help. I feel selfish to post this among your incredible stories and posts, but for for the last two years I have just wanted to support teens with cancer. I have been following and adoring this blog for quiet some time, and I finally decided to just post this. I am looking for suggestions of ways I can help teens in unique ways. I chat with a few people with cancer and stand as an online friend who can talk with them, which I love. It is however rare that I find someone who wants to email me as a friend, because they prefer to talk with other people who have can cancer and can directly relate, which, I completely understand. So here I am reaching out to you, looking for ways that I can help. I am up for knitting hats (cute hats, not cheesy hats), talking online, donating money to a fund, teaching other students about cancer, ect. Ideas anyone?
-Thank you all so much