This post send by Savannah
Okay, so they switched my chemo to a regimen called folfox. Which is commonly used for colon cancer but in this case is being used for my liver cancer. Since I began this drug it has been soooo much worse than the other stuff I was on. I am having side effects which include the normal (fatigue, nausea, decreased appitite etc.) But now I also have new side effects which include painful tingling in my hands and feet when anything cold touches them, stinging in my throat when drinking anything cold, and more hair loss. These symptoms are normal for my chemo from what I am told. But my problem is that I am having certain side effects that my doctors are not able to explain. This includes increased urination sometimes and other times urinating without knowing it, extreme burning in my throat and chest whenever I eat anything (cold or hot) And sometimes when the burning occurs I feel as if I cant breath. Which is extremely terrifying. I would just like to know if anyone has had these symptoms on folfox or on any other chemo, and what I should do about it. Because my health is slowly getting worse when chemo is suppose to be curing my cancer. I know that chemo takes a huge toll on ur body but still… Also my doctors believe I may be contracting diabetes on this chemo, has this happened to anyone also? Any info or advice is greatly appreciated I am just starting to get scared and I am sorry to those of you who feel this is TMI but I just need to know if anyone else has experienced this. Thanks
This post send by Sarah
I am a 22 year old female, but I am going to share the story of my 14 year old closest cousin. This may help you, as a cancer patient; or it may help anyone who has someone close to them that has been touched by cancer.
It was in March 2012 when my cousin found a small bump on her chest. The bump was hard and very painful. After X-rays were complete, the doctors assured her and her family that it was nothing to be concerned about.
She continued life as normal.
In December 2012, my cousin began experiencing extreme pain in her knee. She would wake up crying at night, and had even had a hard time walking. She was in so much pain that she was not able to eat – she lost 15 pounds!
By the end of January, the doctor\’s had realized the first bump on my cousins chest, was a cancerous tumour. It had spread to her leg, where a tumour developed and spread across her whole thigh (femur). The doctor\’s originally though my cousin would be diagnosed with a Sarcoma, a form of bone cancer.Her prognosis was not good.
When our family found out that my cousin had cancer, we all felt a whirlwind of emotions. Her father would not leave his room- he was even getting sick to his stomach. Her mother had to put on a strong and smiling face to make sure my cousin and her siblings were not scared. My whole family put a strong face on for my cousin, but when we were alone – we would break down and cry our eyes out.
My cousin would have to spend 6 months as an inpatient in the hospital, because her chemotherapy made her at such high risk from infection, she was not allowed to go outside at the hospital or anything.
The night before my cousin was admitted, we spent the night hanging out at her house. She told me how scared she was to go into the hospital, she was so scared of the side effects of chemotherapy.
The doctor\’s warned us that she was going to get extremely ill and her hair would fall out very quickly.
As my cousin started chemotherapy, we waited… and waited.. and waited for her to begin getting very sick.
It did not happen! My cousin was on chemotherapy 24 hours a day for a few days, and then and then had chemoterapy every 12 hours. As soon as her counts were back up, they would start chemotherapy again.
My cousin did not throw up ONCE during her whole treatment. She became tired and would often have head aches, but she did not experience many common side effects of chemotherapy. She lost her hair around 2 months in.
After 3 months of chemotherapy, my cousins cancer was completely gone. She has now been in remission for almost 3 months.
Throughout the entire experience, my cousin was so strong and so positive – I truley believe that this is why she recovered so fast.
I remember talking to her about her hair falling out. I asked her if she was nervous.
She said, \"Well I can\’t do anything about it, I am not going to sit and cry about it\"
She has truly been an inspiration to me. With 8 years between us, I have learned SO much from her.
When you or someone you know is going through treatment, it is so important to find strength from those around you. Stay strong, and remain positive!
We are in a day and age, where anything is possible! Cancer treatment has advanced SO much, and there are a lot of ways to manage the side effects of chemotherapy and radiation!
When I first found out my cousin was diagnosed, I could not bare to see her. All I would do is cry.
When I finally built up the courage to face her, I felt SO much better. She brought out a strength in me I never though I had. We spent almost every day in the hospital together and became SO close.
There were many times throughout the journey where members of my family would break down, that is normal. It felt good for them to let their emotions out.
Although you might not be the one experiencing cancer, it is okay to feel upset, mad, or anxious. It is a compeltely normal way to react!
The journey that I have experienced over the past year has changed my way of life, I am now an employee at a local cancer centre, and spend time volunteering with cancer patients. I have found meaning in what happened to my cousin, and i love her so much!
I hope that those of you suffering can do the same.
If anybody would like advice, or simply would like to talk, please reply to this message.
I hate chemo. I hate it so much, the nausea, the jelly knees, the fatigue, the vomitting, the hair in the bottom of the shower and all over my pillow and in my hands. There are so many terrible side effects, the cure can be worse than the disease.
However, its the cure, and it will make me better. Its the only thing that will get rid of the cancer, and its helping me.
Its very weird to hate the thing saving your life this much.
My name is Caleb. I’m 17, and I have Leukemia. I was diagnosed almost a month ago now, and I’m starting my Chemotherapy. Yesterday afternoon, I started my second round.
Thank God the first round was easy on me. This second round is really kicking my butt.
I didn’t feel really well yesterday morning, anyways. And I had the option of either having the treatment this morning, or yesterday afternoon at 4, and I opted for yesterday afternoon, because I had a track meet this morning.
I got there around 4:00, and they hooked me up. I sat in the seat, and waited for it to finish dripping.
Halfway through, I got a HUGE headache. I mean, this was the worst pain I’ve ever had in my head. It felt like someone was hitting me in the head with a hammer.
I finished and went home about 2 hours later, after talking to some really close friends in the treatment place.
I got home, and went to lie down and watch a movie. My head was still pounding.
This morning, I woke up, and automatically felt sick. I stood up, and I was extremely dizzy. I spent the better part of the morning in and out of the restroom, and sleeping on the bathroom floor. I hate that.
I was usually pretty healthy. I never got sick before all of this happened, and I’m not used to it. I don’t like it.
After my numerous restroom trips, I finally worked up enough strength to make it down stairs to say good morning to my amazing mother, and I sat down at the kitchen table, and laid my head down. My mom felt my forehead, and took my temp and all that. Granted- she’s not used to this quite yet, either. She’s used to healthy kids, I mean, none of my 5 brothers have ever had anything that compares to this, and neither has my sister. Quite frankly, neither have I. She’s not very fond of us being sick at all, I mean, the flu season is a terrible time for her! I was running a fever of like… 102, I think. And my head was still killing me.
She sent me to lie on the living room couch, and when I laid down, I turned on Fired Up!, and soon fell asleep.
I woke up about an hour later, and I felt a HUGE surge of nausea, and I leapt for the restroom.
See, now, this is where my story gets pretty pitiful. I hate being sick. SO much. I absolutely despise it. But I’m smart enough to expect it with Chemo.
So, I spent a lot of my afternoon throwing up, and falling asleep, and throwing up, and falling asleep again, and on and on.
Needless to say, I didn’t have a very good day.
I hate Chemo treatments.
Who’s with me?